sunshinecaregiver
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Oh my, Lainy now I know why you and Teddy are so special…he is a Shriner and you are his special lady. My experience with Shriners organization has been nothing short of extraordinary. Thank you BOTH for helping those in need regardless of organization or health problem. My hats off to both of you. G
Mom has constipation problems also. The Dr suggested 1 pain pill + 3 stool softeners and adjust from there. Each patient and each pain med is different so just add or subtract as needed on stool softeners. Just a helpful hint, I hope.
This is a wonderful place to gather information and pose questions. Use it as a part of your Mom’s treatment because it will give you an opportunity to suggest, question, and speak with the Dr with knowledge. It will also save your sanity by knowing you are not alone in your battle, others share the same problems and will give you love, support, and shoulders to lean on. Take care.
Hi, Home health care can come out as long as they provide a nursing survice/therapy/or perform a medical nursing task. They can check dressings and change them, give shots/medications and if all you need is a person to check bp, temp, and weight they don’t come. Move to Florida! We would take care of you.
I hate that there is no standard procedure for treatment because everyone is individual….so I read and wonder why we aren’t doing or trying others treatment plans. Everyone seems to be an experiment in progress!
I hate that you tell people your Mom has cc and you get a real “DUH” look.
I was totally spazzed when we went to the hospital and they came out with names of medication for Mom that I had no clue about….we were given generic from the pharmacy because that is all our insurance will allow.
I hate that people who were friends of Mom don’t come over because jaundice might be contagious. She says everyone is afraid to shake her hand and would never give her a hug!
I hate all of the other things mentioned on previous posts plus the loss of bladder control. It is a bummer.
Sistercorb, This is so sad and yet be thankful you allowed him to make his choices. He was in charge of his life as long as possible. These older people are so tough and so brave. Take care. G
David, My Mom is grouchy too! She has always been in control of her life, doing everything for herself, Making her own decisions about everything, very independent and now she is depending on me. I take her to the Dr appts., I give her her meds, I cook, clean, do laundry, take care of bills and all life things. In other words, she is the child and I am the adult and she has gone into this kicking and dragging her feet! What a change for a person AND you have to fight for your life too! Now that is a problem. No wonder you patients are grouchy, I would me a screaming-meemie if I had so much taken from me and still had to battle on. Go ahead and pitch one from time to time and don’t apologize for it. You don’t have to be Godzilla, but I do understand it is not a picnic. Take care and try to give yourself a break you are human.
Check with your local funeral home. Ours provides the family a book on grief and dealing with death within about 4 weeks after the death of a loved one. They have another special book written for young children so they can understand life and death easier. I read the book and thought my Grandchildren would benefit from their information.
To everyone who posted: Thank you! I have not gotten to the end stage with my Mom, but I keep going online to learn all that I can about treatment, what to expect, how to manage, all things that you share on line. It really is helpful for someone like myself with no medical training and a “first-time caregiver”. Everything is a new experience for me and I want to help Mom as much as possible.
Lainy, Have you tried a sheepskin? Patients like to feel the softness when they cuddle on them and they are washable. I looked up on line, but you can probably purchase from a medical supply store in your area. Hope things improve for both of you.
Wish I had a sister or brother to share my journey with Mom’s care and her cc. I hope you feel better quickly and I hope that you will be strong enough to explore the the new treatment options. Whatever life gives you enjoy and make happy memories.
I know your heart is broken. Remember a burden carried alone is so heavy, but when friends share the burden with you it is so much easier. You can feel the comfort of all your friends at this site. We all share in your grief and loss. Take care and know that we are all praying for peace, loving family memories, and rest for the caregivers.
It irks me that insurance + Medicare will not pay for home health care unless there is a medical reason for a nursing visit. I would love to have a visit from homehealth caregive once per week or even biweekly to verify we are still doing good work. I have gotten aggrevated and frustrated by the “savings” I am giving to the company because I want to keep Mom at home and happy. I could place her in a nursing home and deplete my funds before they would start paying, so tell me, what am I pay them for? I presently take her to Dr visits and it is not easy getting her in and out of offices with our car. I take care of meals and medications, ect. We pay big bucks for her insurance and it will pay for hospital care and portions on her medication and that is it.
Cancer doesn’t care about age, families, or wealth. It just consumes lives and wreaks families as we know them. It will bring families closer as we fight together and will bring perfect strangers from all walks of life together if we let others share their concerns. Just one look at the posts on this site and you can tell we all are individuals, but share a common bond in cc. Everyone tries to relay what is working or not and tries to offer encouragement and information as it applies. Try to read and post whenever you can.
