Swadmin
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I am only just going to start the radiation and chemo next week. I’m at Mayo AZ and the protocol is slightly different here. I am getting oral chemo only and they don’t do the brady radiation. I did the radiation simulation Monday and the plan is to start the radiation and chemo Monday the 7th. If you don’t mind, how old are you?
Did they biopsy your old liver after transplant? What was your CA 19-9? Did the chemo and radiation shrink the tumor? I haven’t had a positive biopsy either and was really hoping that it was something else but I think the risks of hoping its not cancer and being wrong are too high.
How long were you in the hospital after the transplant? How have the side effects been from the anti-rejection meds?
I start the radiation/chemo treatment next week for 4 weeks and then on the waiting list for transplant. How long was your wait for transplant? How are you doing overall?
I had another ERCP a month ago and they were able to put stents in successfully so thankfully I don’t have the biliary drain anymore. The stents are working great, my bilirubin is down to 1.7 and jaundice is gone.
So far my experience at Mayo has been great, the doctors are very open and explain everything really well. I had my radiation simulation yesterday in preparation for treatment on Monday.
