Tarheelll
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Hi Kellyrosie, I am so sorry you are going through this.
My dad was diagnosed in early 2019. I think he may have had one PET scan at the outset but his current care team doesn’t use them- at MD Anderson. They have told us that the CT scan is the gold standard.
I agree with Hannaha– getting a specialist you trust and getting genomic testing is key. My dad has been on the same targeted drug- Tibsovo- for just over 2 years. Don’t give up hope! And please do keep asking us questions here (or in the Facebook groups if you decide to join there).
Take good care,
LauraThank you so much Gavin and Mary. His cancer is unresectable so we are exploring other options. We got an appt at MDA but are also seeing someone locally in the interim.
He is obviously anxious to start treatment but we don’t want to take options off the table. Is the genomic testing feasible after he starts chemo? We have a sample from the biopsy that we hope can be tested but if it can’t I’m wondering if that would delay starting chemo.
Thanks again!
