I was just diagnosed with cholangiocarcinoma on Feb. 2015. I started feeling ill in August of 2014, just mild pain. Was sent for heart issues, drs’ decided it was gerd or hiatal hernia. No PPI’s helped at all. Had many non productive tests. Endoscopy, colonoscopy, HIDA, ultrasound, Barium swallow. Have lost 80 pounds. that was the only thing doctors seemed to take seriously. I just cannot eat. I now have pain all the time. Used to be just in the afternoon, evening.
Then finally a cat scan which showed the growth. Then a endoscopy with small needle insertion. EUS
Am going to Mayo clinic in Jacksonville. Will be seeing an oncologist on 3/10.
Am very depressed. The only positive thing I have read are the testaments on this website about people who have had positive outcomes.
Waiting is the worst.
thanks, for listening.
Stevie B.