theasif
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Tess wrote:Hello Asif, two leading cc specialists at Mayo follow:
Dr. Gregory Gores
gores.gregory@mayo.eduDr. Boris Blechacz
Blechacz.Boris@mayo.eduAppointment Office For Mayo Clinic (Rochester Minnesota)
1-800-446-2279 (toll free)
507-284-2111 (advanced appointment desk)507-284-8884 (Mayo International Office- they’ll set up appt. for international patients)
Open 7:30-5:00 Central Standard TimeAsif, as you are calling/visiting from Pakistan, you’ll want to use the international patient number.
Wishing you the best,
Tess
Dear Tess,
I am really thank full to your efforts.
Best Regards
Asifdevoncat wrote:If you look under the section Newly diagnosed (very top of the page) there is a section on major cancer/treatment centers and there is contact and other information there.Kris
Thanks kris,
I know the newly diagnosed section there is contact information but i need first to discuss my case with specific doctor because i have contacted in Singapore and the heapatobilliary surgeon refuse that he cant do surgeroy now.
and about newly diagnose section or any other medical web site they said come to hospital and take the appointment. And you know how much is the expenses only travel from Pakistan to USA or UK with residence approximately US$ 40 to 50K so How i can bear all these expenses only for appointment and after doctor will said sorry we can not do any thing.
Yes if doctor will said ok we can do any thing come here we should travel to anywhere.
So now i think you understand to my point of view.Regards
Asifhi Violarob .
My brother diagnosed CC and I need you help regarding MD Anderson Hospital and CC.
Please contact me through email or give me your email address i want send you all reports and case history.
Kindly reply me soon.I shall be very thankful.
anishaq2@gmail.com
theasifiqbal@gmail.comRegards
Asifdebrah wrote:Asif, I have not been on this site in a while but just noticed you had asked for Dr Jenkins email address. His email is: Roger.L.Jenkins@Lahey.org I am also his patient…and fellow cc survivor! He and his staff are miracle workers. Best wishes to you and your brother. debbieDear Debrah.
Thanks for your reply and help me for DR.Jenkins Email address.
Best Regards
Asifmahipal33 wrote:Dear asif
i have send you an email giving my opinion about your brother. No one can tell you as how long any body survives. there are many factors attributed to life and death. CC In india and pakistan is rare . its the very old psyche and old teachings in 80s and 90s. there are lots of changes in the management and early detection of the case which cures or prlonges the life un heard in india and pakistan by yesterdoctors. Iam the living example with CC detected in 2007 july resected in march 2008 and living with perfect health and work. i had trekked 15000 ft nathullpass last oct08 and even till this day doing marathon walks of 25k every month and mind you never rested but for the 4weeks during surgery . its the attitute that is every thing . be positive . Dr Mahipal reddyDear DR.Mahipal
I am really very thankful to your detail answer and very positive thinking to hope fully for my brother.I pray for you GOD will give you long and healthy life.
Regards
ASifmahipal33 wrote:Dear Asif my email addresse is mahipal33@gmail.comDr.Mahipal reddy,
I have sent all the reports on above ur email.
Thanks
Regards.
AsifKristin wrote:Dear Asif,When doctors say that your brother will live only 4-6 months, please remember that doctors aren’t God– they don’t KNOW how long we will live, they can only say what usually happens. Doctors once told me I had 6 months to live, but that was three years ago.
Sending all my best wishes to you and your brother!
Kristin
Dear Kristin,
Thanks for reply and Pray. Yes GOD can do any thing and I hope GOD will help me for longer life of my brother.
Asif
mahipal33 wrote:Dear Asif
as per your letter the way it looks your brothere might have diffuse metastasis in the liver and lymphnodes which might have been the reason for aborted attempt of surgery at chennai. if you can send me the reportsof ct /mri /mrcp/ any biopsy with HPE reports then i can comment on the case . any way my good wishes r with your brother in this dark arena of the disease . i hope for a good light of hope at the end of the tunnel of cc
Dr.Mahipal reddyDr.Mahipal reddy,
Thanks for reply and prayer for my brother.
I can send you all the reports through email.
Kindly contact me through email at
theasifiqbal@gmail.com
or send me your email.Thanks
Regards
AsifHi Kay
As per Internet searches and my docotrs advices me CA 19-9 test never come eaxctly and very help full some time for a infection the level can be increase you can search it in internet and you can find lot of things about CA 19-9.
But here is good news you dad has passed 2 years.
Asifmarions wrote:Asif…..Phone: (781) 744-2500 Fax.: (781) 744-5743. You will be in touch with Julie Doyle, the administrator for Dr. Jenkins.
Good luck,
MarionThanks
Mario and other members.
I want also one thing that here in Pakistan and India Doctors are saying the life of Cholangiocarcinoma patient is 12 to 18 months maximum and my brother has passed 12 months after first diagnosed so they are are saying its enough now your brother life is not more than 4 to 6 months. So I requested all of you can you let me know exactly or atleast as per your expereince and knowledge how much is life expected of cholangiocarcinoma patient and specially after reading my brother case for him.
Thanks all of you.
Regards
Asifdevoncat wrote:I am sorry your brother is facing this. It is hard on family and friends as well. I had a very wonderful surgeon in Edinburgh at the Edinburgh Royal Infirmary…his name was Professor Garden. It is a wonderful place. Other people in Britain have highly reccommended Prof. Lodge (I think in Liverpool?). I now live in Sweden and really cant recommend anyone here…I feel like I am teaching the doctors about this cancer.There are several good centers in the US and if you look under the section newly diagnosed, there is a list of hospitals that have experience in treating this cancer. Many doctors will accept your brothers medical files and scans and offer an opinion without meeting you. Just contact them or their department with the information.
I hope you find what you need.
Kris
Kriss
Thanks for your reply and detail information.
I will contact them through newly diagnosed section.
And if you find any update kindly emial me.
Thanks
Asifmarions wrote:Asif….I am so sorry to hear about your Brother but, I am happy to see that you have found us. Do you have all medical records availble such as, blood tests, CT scans, doctor’s reports, etc? If so, then you might want to get in touch with Dr. Jenkins. Others may have suggestions, also.
Dr. Roger Jenkins
Lahey Clinic
Burlington, Mass
(781) 744-2500
Julie Doyle
AdministratorGood luck and keep me posted. Let me know if you need additional help.
Marionmarion
Thanks for your reply I am really very happy to see ur reply.
If you can send me email address of Dr. Roger Jenkins I will send him as well if you need. I can send you through email all reports.
my email is theasifiqbal@gmail.com
Thanks
Asif
