thebompie4

my husband looked into several clinical trials.

because of the “usual” late stage (3 or 4) diagnosis with this cancer–
he was not eligible to participate in the one that interested him most.

as someone else mentioned, if trials are not in your area (state/town/
close proximity) the cost of travel and staying in another part of the
country for an extended period of time can be make participation
very inhibitive (cost wise).

there was one in Mass. that was ALMOST a fit for him–but he was too
far advanced (stage 4) and he also would have had to stay in Mass for
about 6 weeks (at his expense).

welcome Jason

i don’t have much to add–my husband has stage 4 CC (spread to lungs
and lymphs as well) so he is not ever a candidate for surgery.

(He’s 44, we have 4 kids age 19 to 9)

But I did want to say after one FULL round (9 weeks) he has had
GREAT “shrinkage” of his tumors (gem/cis).

We are continuing onward…we’ve met another CC “survivor” via
Facebook who is the same stage and cancer spread as my husband
(So again no surgery options available).

He’s on month 20 and has had a FABULOUS response to chemo.

Just know there’s always hope!

best wishes…Dorien (kyle is my husband)

good luck Carrie and best wishes–today is our chemo day too.

We’re off for Round Seven!

Dorien

Lainy–

Thanks for that info (sorry to threadjack orig thread–)
did NOT know we could send info off to other dr’s.

That is good to know since travel is not an option!

Treysam–GREAT news on “shrinkage!”

“in the lungs” means that the cancer has spread to my husbands lungs
as well–

he had his first PET scan thursday- after 9 weeks of treatment!

welcome.

my husband is 44 with CC–in his liver, lymphs and lungs.
he was diagnosed in March of this year.

we have had two opinions (locally) and were told he will never be a
candidate for surgery because he is stage 4, and because the cancer
has left his liver.

he has just finished his first round (2 weeks on, 1 off–9 weeks total)
with Gem/Cis.

he tolerated the chemo EXTREMELY well (other than fatigue) and is
still working, living life, etc.

I would love to hear if other Drs consider surgery for CC patients
where it has spread—we were just told its not an option.
(and unfort. we dont have the resources financially to travel
for other drs/opinions.–that’s just a fact and NOT a pity party!)

oh my goodness –you are in SLC too.
(we are as well)

with literal tears in my eyes…i want to tell you how sorry i am
for your loss–i know someday this will be our path and it makes
me weep every time someone else looses this battle.

i am truly sorry.