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I’d like to Thank everyone for their deep condolences and my go back to everyone that has also lost a loved one.
It will be 7 months Feb. 3, 08 that I lost my love, my life. It feels so very empty and lonely without him. It seems like everyone just thinks our lives go back to normal and that I should be fine. I’m tired of telling everyone that I am fine, I”M NOT FINE. I feel so lost and angry at the world. I’m afraid of letting people know how sad I feel. I need him back in my life. Frank was such a good man and my hand of support for all my daily things. I still reach for the phone when I have a bad day or if something good or funny happens. We use to talk on the phone as least 4-6 times a day.
I miss his voice, I miss his strong hands, I miss his laughter and his smile.
Am I not healing fast enough or does everyone feel this way.I just got word from my mom (I have a bad cold and can not be at the hospital) His fever is gone they have him on IV antibiotics and morphine for the pain.
They did an ultra sound and his tumour is now 2.7cm it used to be 3.5 so maybe that news will help get out of the funk that he has been in.They are looking for an abcess, no word yet on weather or not they found one.
Its coincedental though his procedure was two and a half weeks ago and this fever was so sudden. similar to your hubbies situation.Keep you posted.
michelle
HIi Mary,
Thank you so much for sharing your story.
My family just feels so hopeless right now because he has been suffering so much. It almost seems never ending.
I shared your husbands story with my mom and dad and Im hoping they will see that others have been down this road, suffered hell and come back around.Dad was rush to the hospital last night his fever was 104.2 and he was in great pain.
His fever is down this morning and like you previously warned they think he may have an abcess.
They are scheduling an ultrasound and maybe cTscan for this afternoon.He is feeling much better compared to when he was admitted.
Will keep you posted
How is your husband doing??
Michelle
Yes we were originally told that if my dad had the metal stents put in he who never be able to have surgury. We have heard other wise and are are currently seeing a new surgeon to see what he thinks. I don’t think he would even be looking at my dad if he didn’t think surgury was still possible.
Also we found out that the stents are titanium a nd MRI friendly! Whew thats a relief because we really want another MRI done CT scans are just not cutting it!!
Thank you Jules
Michelle
Hi Stacie
Im thrilled to hear that Mark is doing the Gerson Therapy.
“The Gerson Therapy” book was one of the first books I read when my dad was diagnosed. Two weeks later we were fortunate enough to meet with Charlotte Gerson (Max’s daughter) at the whole foods expo. Between her and the other individual at their both we learned a great deal, they were wonderful.
My dads diet is based on Gerson, Mabribiotics, Alkaline based etc. Similar to Geoff All Organic, No Meat, No dairy,lots of tea and suppliments
(the Tea my dad takes Pau D’arco/Taheebo is used by Gerson as well)I am really interested in hearing about Marks progress.
Good Luck
Michelle
Hi Guys
sorry Ive taken so long to respond, just trying to figure everything out.We looked on his blood works and there is a catagory Ca 19 however it has question marks where the level should be.
CEA is not there and we will be questioning the onc. about this
We have now been sent to another surgeon, who has scheduled my dad for another CT and Ultrasound (Wednesday morning) Then they will decide weather they think another MRI is needed.
Im hoping he does blood on Weds. tooDad is looking great feeling good but finding it hard to put on weight.
His caloric intake is up to 3000 per day and his weight will not go up.It had gone up at the end of Dec. beginning of Jan. but now its slowly going down, any suggestions??
researching natural weight gain is a joke, everybody wants to be skinny nobody is posting “THE GET FAT NOW HERBAL DIET!!!” we guarentee you’ll balloon 27lbs by tuesday LOL
Anyways, the journey continuesGood night all
Michelle
Wow Mary that is great news I hope and pray your husband stays on a healthy coarse aswell.
When my father was diagnosed they told us that Klatskin’s does not responde well to chemo and radiation they also told us that due to position and size he was unresectable. They were unable to get the plastic stents in and told us that as much as metal stents were better they would also prevent him from ever having a resection.
We did find a wonderfully optitistic oncologist who said he had had some success with GFLIP but that it would not cure him it would only possibly extend his life by a few months and improve his quality of life.Question… when your husbands CTSCAN showed nothing what were his blood levels like?
Please do try the Pau D’arco even if his results remain positive also I strongly reccomend Reverse Osmosis Water
I have had great success switching to this water while treating my 10 year old Autistic son. His behaviors and thought patterns changed instantly. Its amazing what something as simple as changing water and diet can do!!Michelle
Im so sorry for your loss
I found it very hard to read some of the posts aswell when my father was first diagnosed.
It always seemed that no matter what anyone tried the end always played out the same.
My family and I are fighting this tooth and nail.
We have had success so far but we know its a never ending battle.
If you do come across and organizations that support cholangiocarcinoma research or if you start one on your own Let me know I’d love to participate in anyway I can.Michelle
You can also find so much info online about Pau D’arco /Taheebo
Its worth reading and sheds a little hope and of coarse skepticism but that comes with all things new and unfamiliar.
Michelle
Hello all,
Thank you so much for your comments.Regarding the diet:
The day my dad was FINALLY released from the hospital, we went out and bought …
A Juicer
Rice and vegetable steamer
REVERSE OSMOSIS WATER (5 bottles to start)
All ORGANIC fruits and VeggiesWe started juicing all kinds of crazy concoctions for him (like I said before, he is a trooper, some of the juice tasted really NASTY)
My mom went to see a TCM doctor and brought home three shopping bags full of herbs, or as my dad said something that looked like it had been swept up from the backyard LOL!
We boiled the herbs and made my dad this tea which he was only able to stomach for two days before it made him sick to his stomach.
Next we went to the health food store. At out local health food Store “Garlic Grove” my mother explained the situation to the owner who proceeded to tell her the story of Josip Gabre, a man from our city who beat cancer, she gave my mother his book to borrow titled “How I Beat Cancer” and explained that she worked directly with him.We both read the book and decided my dad should be on this Taheebo/Pau d’arco Tea from Brazil. he started immediately.
The following week his diabetes was completely under control, and his bili rubin level had dropped significantly.
So at this point he was on a strict Vegan diet and the tea.
Our major problem then, was that my dad was still losing weight and that was causing him to be extremelt tired and miserable.
We read more books, visited more web site and had to make a descision as to which road to take regarding diet. This part was soooooooooooo confusing there are so many different diets and so called miracle cures it gets frustrating.
We looked at them all and found that they all had the same foundation, organic and at least 80/20 vegetarian diet.
so how do you fatten someone up on a sugar free, dairy free, vegan diet??? It hard and its been a slow process but here’s what we did…
There is an organic protein shake called “VEGAN” it has 160 calories per scoop, it contains every vitamin suppliment you could ever need as well as Omega’s and next to no sugar.
Juices with banana’s, strawberries, Soy milk and a little bit of STEVIA (tastes great)
Avocado is extremely fattening and full of nutrience
Potatoes, Brown Rice, Lots of UNSALTED almonds, dates, tones of greens, lots of small meals.
Suppliments:- Geraniun capsuls (helps oxidize the blood)
-Vitamin C, Buffered, if you can stomach it take the powder if not take
tablets
– Taheebo Tea also called Pau D’arco 1 and a half to two litres per day
as well as 4-6 capsules. If you can find the tinture it is said to be
better thats still being debated! Our whole family is taking it and
are all seeing improvements in our own health.
– Selenium, Omega 3,6,9 and occasionally I throw some “cell food”
into his water (shhhhh he doesn’t know that one LOL)Plenty of fresh air, this one has been harder to get him to do as he was way too tired before. so we bought a dog in hopes that he would walk it, so far my mom walks the dog and occasionally dad does too!
One thing that I think has also been important is “cheat days” for sanity purposes!
He’s allowed to eat chicken breat (organic) about once a week.
and occasionally a bit of cheese.Oh, we also started giving him a bit of essiac tea last week no complaints so far!
I know yesterday I had commented on his CTSCAN but I think what is more important is his blood results.
Of the 42 blood levels tested only 1 was high (his GGT) which has come down from 708 to 172 and his Lymphs were a bit low EVERYTHING else was at normal levels and I don’t mean normal for a man with the big C I mean NORMAL!!!!!
LAst month his blood levels were way out of wack so to me this is incredible.I hope this post helps
I think the hardest part of the diet is wrapping your head around that fact that nutrition might be able to heal your body. We are so conditioned to believe in pharmacuticles and medical technology that anything else seemd way too hoxie!!!God Bless
Michelle
