Thrashm20

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  • in reply to: 33 yo ICC WA state #101550
    Thrashm20
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    Hi Celeste,

    It’s really nice to meet you. I was 34 when I was diagnosed with Stage 4 intrahepatic which was September of 2020, also with a BRCA2 mutation. I’m 36 now and it sounds like you’re dealing with a lot of the same issues I had when I first started gem/cis. I also had the high cell kill which was causing an artificially high CA 19-9 level. I also was dealing with a lot of under rib pain, which I still get sometimes. This always worries me but it doesn’t always seem to be linked to regrowth. I use a heating pad when I have flare up of rib pain. I bring it to work with me, and just relax with it at the end of the day. Since I stopped cisplatin (just on gem now) after my first round my levels really evened out. I’m stable and my liver levels are normal, and tumor markers really just dropped a lot. I’m hoping you’ll see the same stability after your first round is complete.

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