Forum Replies Created

Viewing 15 posts - 1 through 15 (of 565 total)
  • Author
    Posts
  • in reply to: My Beautiful girlfriend of 7 yrs ! #44215
    tiapatty
    Member

    Giovanni,

    Lauren is very lucky to have you in her life, her mom said you are a barber and you even cut her hair and I find that so sweet. And you two are so young to have already been together for 7 years! Young love is a splendid thing!

    Patty

    in reply to: Introduction #56080
    tiapatty
    Member

    Dave,

    First, welcome to the best little discussion board. Second, I think it was pretty cruddy of the doctor to give you 6-9 months, I think you should ask him if he can see the winning lotto numbers in his crystal ball. We have many people on this board who were told the same and they are still here and kicking so take what he said with a grain of salt.

    It’s great you are on the trial, we will all be hoping and praying for you on your path to a brand new (well, actually, I guess a used model) liver!

    Patty

    in reply to: Introduction/Helping Mom #56129
    tiapatty
    Member

    Welcome to our little corner of the world, you will find a wealth of information here and the nicest people. It’s great that your mom is feeling good, keep us posted and ask questions if you have doubts or need information.

    Patty

    in reply to: Asking for prayers #56155
    tiapatty
    Member

    Chicago is praying! Patty

    in reply to: recentlydiscovered cc foundation #55604
    tiapatty
    Member

    Sandy,

    Thanks for your efforts to raise awareness. It was very kind of you to reach out to your old classmate, you provide her with comfort only you can give, you really know what she is going through in terms of grief and what she will confront in the years ahead as she navigates life without her husband. It will not be easy but she will not be alone.

    Patty

    in reply to: Update on Ben #53445
    tiapatty
    Member

    Tom,

    I hope you are able to make the trip tomorrow to MDA, I think two heads are better than one, maybe they will have a different take on things. Caregiving is a full-time gig so just keep us posted when you can, I take a mental relaxation break every time you mention boats passing on a canal, it must be a lovely sight.

    Patty

    in reply to: My wife’s extrahepatic CC #55069
    tiapatty
    Member

    Eli,

    Thanks for sharing your great and good news. The hernias are unfortunate and an annoying complication but at least it is something they can just watch.

    Having made the rounds to many different doctors with my mom I would have appreciated more humor but I can see where my mom might not have, even though she was a hilarious lady it was her body that was the punchline.

    Patty

    in reply to: New here #55615
    tiapatty
    Member

    Tiffany,

    Welcome to our little family, I am sorry you have had occasion to find us but I have looked at your FB page and I can see you have an army of angels on your side and now you have us, too.

    May I ask how your cc was discovered? Did you have symptoms or was it by accident?

    Patty

    in reply to: My beautiful husband has passed. #55463
    tiapatty
    Member

    Joann,

    I am so sorry for your loss and your children’s loss, this cancer takes so many good people from their families. “What would Dave do” is a great legacy to leave behind, to have provided an example of what is the right thing to do, that is something your children will always have as a compass to live by.

    Please do visit when you need support, we all need each other.

    Patty

    in reply to: Grammer school to honor my Dad #55428
    tiapatty
    Member

    Kathy,

    Well, once again a post on this board has turned me into a big ball of mush. Your dad sounds like a gem and those kids really are very lucky, what a great role model Mr. Jim is, especially for the boys, of how to be a good person.

    Some people never find out what they meant to others so it is nice your dad can appreciate this honor. I had an uncle who died very suddenly and at the wake we were very surprised by how affected his coworkers were, I wonder if when he was alive he realized how they felt about him. What a gift they have given your dad, to know that he matters to so many people.

    Patty

    in reply to: She battled to the end #55514
    tiapatty
    Member

    BB,

    I am so sorry she is gone. It is hard for a 15 year-old girl to be without her mother. Your daughter has learned at a young age that life is precious and not to be taken for granted but this lesson has come at great cost.

    Poetry has comforted me greatly. I am no poetess like our Lainy but here is one for Susan by one of my favorites:

    Dream Land

    Where sunless rivers weep
    Their waves into the deep,
    She sleeps a charmed sleep:
    Awake her not.
    Led by a single star,
    She came from very far
    To seek where shadows are
    Her pleasant lot.

    She left the rosy morn,
    She left the fields of corn,
    For twilight cold and lorn
    And water springs.
    Through sleep, as through a veil,
    She sees the sky look pale,
    And hears the nightingale
    That sadly sings.

    Rest, rest, a perfect rest
    Shed over brow and breast;
    Her face is toward the west,
    The purple land.
    She cannot see the grain
    Ripening on hill and plain;
    She cannot feel the rain
    Upon her hand.

    Rest, rest, for evermore
    Upon a mossy shore;
    Rest, rest at the heart’s core
    Till time shall cease:
    Sleep that no pain shall wake;
    Night that no morn shall break
    Till joy shall overtake
    Her perfect peace.

    ~Christina Rossetti (1830-1894)

    Take care of yourself, I pray for you and your daughter.

    Patty

    in reply to: Mom is very depressed. How can I help her? #55380
    tiapatty
    Member

    안녕 = An nyoung = hello, informal in Korean

    What is your mom’s current condition? Is she mobile? Does she feel well enough to leave the house? If so I would ask her if she would like to go places–concerts, museums, movies, gardens, etc. Is she well enough to travel? If so ask her if there is somewhere she has always wanted to visit.

    Does she have other relatives and friends? If so make arrangements for outings or visits. Older people in the U.S. can become socially isolated if they can’t drive, if that is the case with her she may want to see relatives and friends she has not seen in a while.

    Patty

    in reply to: 6 yrs post diagnosis and still hanging tough #52273
    tiapatty
    Member

    Rob,

    I can’t imagine a greater test of a relationship than supporting a partner through an illness such as this. Many people take a vow but not all are able to keep it. Your wife is indeed lucky to have you by her side and your daughter as well.

    It is difficult to watch a loved one suffer. When we bear witness to suffering we truly begin to comprehend what it is to feel compassion and to love deeply. I pray for your wife, that she may know peace.

    Patty

    in reply to: My Husband and Cholangiocarcinoma – Part 2 #42410
    tiapatty
    Member

    Margaret,

    Well, that is a very inconvenient blood clot, it must have been hard to go to a hospital after spending so much time there these past years. The shots don’t sound too fun either but they will mend you.

    Marion,

    A truly lovely reposting, that is the first chapter of the book you are going to write, it is pure poetry.

    Patty

    in reply to: breast milk #43617
    tiapatty
    Member

    There are unfortunately lots of new people on the board and people have been asking about alternative treatments so I thought I would resurrect this thread. I did another search and found this page, not sure how current it is, the explanation is good but the links toward the end do not work:

    http://www.acsu.buffalo.edu/~andersh/research/milkcancer.asp

    Also found this, older article but I don’t remember finding this one when I searched before:

    http://abcnews.go.com/GMA/OnCall/Story?id=7682702&page=1

    Patty

Viewing 15 posts - 1 through 15 (of 565 total)