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Thank you everyone!
It’s so nice to talk to people that have been through this.
Currently my hubby is being treated at Viginia Mason in Seattle. Tomorrow I am calling UofW, to get his scheduled for a second opinion.
This has metastasized to his liver, has ran through his blood stream & is in the retroperitoneal & lymphnodes. The tumor board refuses to do any type of surgery, because it’s eveywhere & if the tumor on his liver is not down to a certain size, they will not make him a candidate. What is really bothersome to him, he doesn’t understand why they cannot take the little ones in his abdomen out, that is where his pain comes from & radiates to his shoulder, I have been doing alot of research & am finding that the cyberknife would be a great tool, any thoughts? Can he still do some kind of chemo while going through this? The main concern was that he would have to stop the gem/cis for 6 weeks & they do not want to do this, for recovery from surgery. I am wondeing if how invasive the cyber is vs. complex surgery?!
I go in with a million questions & would love some advice from you all, that have experienced this first hand.
Thank you for all the love, thoughts & prayers!
Teresa
Thank you so much!
I can’t stop the tears! I am having “a” day – I am as strong as they come, but I have been struggling, that is how I found you.
He is currently on gencitabine & cisplatin. The pain (currently) is in his abdomen & radiating to his right shoulder. He had the pain block procedure done one week ago & is finding no relief. He has had a current scan & they found that the little tumors in his abdomen have grown, just a bit. It’s amazing how small they are & how much damage & pain they cause.
He is being treated in Seattle & I just found on here that the UW is a great place, I am going to touch base with them, as I think a second opinion would be a great idea, we actually told his oncologist that last week, although we feel that the care he has received is wonderful, this is his life we are dealing with & we will do ANYTHING to save him.
I am trying to navigate myself through this website, is there somewhere I can read your story about your husband?
Thank you for your response
