trevjax25

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  • April 13, 2012 at 12:42 pm in reply to: Back again… #59679
    trevjax25
    Member

    Thank you everyone for their support. Yes I have bought travel insurance, never go overseas without it.

    I met with my nurse practitioner yesterday. She said my doc wanted to explore two possible trials for treatment. They have to first determine if I’m eligible or not. I don’t know how I feel about this path (by the time I get back from my trip it will be a month since I last had chemo, I was unable to receive treatment yesterday, body was too weak).

    Having said that, I have read that people have contacted Dr. Javle in MD Anderson and heard nothing but good things about him. If I emailed him, would he be open to hearing my case?

    I had tried scheduling an appt at MD Anderson and they said they would only see me for a 2nd opinion when my scans starting showing disease progression…

    Thanks everyone!

    April 10, 2012 at 1:09 pm in reply to: Back again… #59675
    trevjax25
    Member

    Hey Marion,

    As my tumor markers have increased I have become increasingly fatigued. Very little energy. I meet with my oncologist tomorrow. I don’t know if my body could withstand another chemo treatment.

    Having said that, I am supposed to go to Europe next week. Here is my dilemma. Should I go and risk not having treatment for a month (it will be a month by the time I get back)? Would it make much of a difference?? Or should I stay and invariably receive treatment next week??

    I had scans done last Thursday. Things were stable despite the hike in the CA 19 9.

    Thanks again guys.

    Trevor

    April 5, 2012 at 10:47 pm in reply to: Back again… #59673
    trevjax25
    Member

    Hey everyone,

    I had scans and blood work today which I am somewhat confused by. My tumor markers are up to 1,600, yet my scans remain stable, no new growth in my omentum/peritoneum. Should I take this as good news?

    The tumor cells are obviously developing resistance to the GemOx. Not sure what next steps will be. Switching up treatment-but to what?? Second opinion??

    Thank you to everyone for their support!

    April 3, 2012 at 9:59 pm in reply to: Back again… #59668
    trevjax25
    Member

    You’re right Marion about the maximum benefit of GEMOX. Now that I had a good yell and cry, I can deal with the next step, finding an effective chemo. I’m reaching out to you guys, what other treatments have been successful? When GEMOX or Cisplain/Gem have stopped working?? Have there been effective outcomes from the treatment?

    We don’t think about feeling bad when we feel good. I’m just so overwhelmed right now. I feel like I have exhausted all my treatment options. I don’t know what else can be done. Sorry for the defeatist attitude, its just that when things stop working so suddenly, I feel lost.

    Please help.

    Trevor

    April 3, 2012 at 7:15 pm in reply to: Back again… #59666
    trevjax25
    Member

    So I think I found out the problem. Come to find out, my tumor markers jumped from 117 on March 12th to 789 on March 27th. This would explain the nausea I think. I am due for scans next week. Anyone know of any alternatives to GemOx? My tumor markers were stable for 5 months or so. I am being treated at Mayo in Jacksonville.

    Bad news is never nice.

    Thanks.

    Trevor

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