truby
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My aunt is dancing with angels. She passed away last night. It is so hard and sad but I am truly thankful that she did not have to suffer for long. The entire family was with her yesterday. I had read that many times loved ones will wait to pass until family has left so I shared this with my family. Since we had been with her all day we said our good byes and decided to go home. Everybody had left by 8:04 and she took her last breathe at 8:12 in her home thanks to Hospice. My Mom’s friend said that was her last gift to us….waiting to go until we left. I do truly appreciate her gift! She will forever be missed and in our hearts! I hope they find a cure soon!!!
Keeping everybody that has been touched with this cancer in any way in my prayers always!
With love,
TinaIt has been a while. I hope everybody is doing good!
A lot has changed. She did not have a blockage. Long story short, chemo did not work, the cancer was still growing aggressively. She has stopped chemo and once she did she started having a lot of pain again. Hospice has been brought in and now it is just keeping her comfortable during these last weeks we will have with her. She started taking pain medications with morphine this week and she is completely out of it. Her eyes are not steady and she slurs her words. She is already so weak that she cannot get up on her own, she tried walking to the bathroom with assistance yesterday and her legs gave out. She told the doctor one thing she wanted was more time. She said one thing she wanted to do was go camping. Since she has declined so quickly I do not feel this will happen.
I enjoyed learning about many of your experiences! I continue to pray for each of you during your or your loved one’s battle. Hopefully there will be a cure soon!
Love,
TinaMarion, you all are absolutely AMAZING! I read so many posts and am just amazed at all your knowledge and the support that you provide. All of us have a story and you make everybody feel that their story is so very special. Thanks for all you do! Tina
Good evening,
Thought I would send a short update from my Aunt’s second opinion today with the University of Iowa. They agreed that there is not much that can be done for her. They also said the chemo she was receiving would be what they would have done as well. They stated the cancer is in both lobes of the liver and my Mom thought they said on the inside and outside of the bile…not sure if that makes sense to anybody. This weekend was rough for her, nothing would stay down, not even a little. She has lost 20 lbs in a little over a week. They gave her two choices, either be admitted to the hospital at the University of Iowa Hospitals or be admitted to St. Lukes in Cedar Rapids. She choose to be admitted to University of Iowa. She is dehydrated so they will be giving her fluids. They are going to run tests to see if there is a blockage causing her not to keep solids/liquid down and also her stomach is full of liquids so they are going to see what that is about and said they may need to drain the fluid. (I have no idea about this fluid in her stomach area…they moved her stomach and my Mom said you could hear the fluid in there.) My Mom said she seemed relived to be admitted…as I mentioned in an earlier post she said how she wanted to be admitted. The University’s concern at this time is getting her more comfortable and figuring out the fluids in the belly and if there is a blockage.
Lisa, thank you for letting me know about your experience. My Mom brought up the blockage right away…and they expressed concern that she may have one. I feel this is a great place to start and at least figure out what is goiong on vs just giving more meds that are not helping her feel better.
So not as short as I thought…I will post again once the testing is done. You all are so awesome and I pray for each person and family that is going through cancer!
Good night!
TinaThank you all for the information. I will be writting down the feedback into questions for the doctors. And I will ask about the voimiting too! I made an appointment for my aunt on Monday for a second opinion at the University of Iowa. Can’t wait to hear what they opinion is. I feel excited for some reason, guess I am just hopeful.
I will let you all know what we find on Monday!Lisa – I will be looking at your posts about your experience!
Take care everybody!
TinaI wanted to make a correction to my initial post as well: They also found a spot of cancer on her cheek and a couple spots on her liver but said they would not worry about that as the chemo would help it all.
Should say They also found a spot of cancer on her cheek and a couple spots on her LUNG but said they would not worry about that as the chemo would help it all.
There was no tests besides the scan to know if what they seen on the cheek and lung was cancer.
Thanks!
TinaThank you all so much for taking the time to read and respond to my posting! Kris congratulations to your husband on his last chemo!
Marion – She started vomiting and spitting up what she drinks since before her diagnosis. The first dose of chemo she did not seem to have any side effects. She received her second dose of chemo last Wednesday and Friday after getting a bag of fluids, she has been getting sick since. She is blaming it on the fluids but I thought it may also be the chemo reaction that was delayed. She only eats very minimal…like last Monday she had a banana. She cannot keep down water all the time either…hopefully when she gets sick she doesn’t lose it all. From the list of drugs I had them print out for me, I believe the chemo she is on is Gemzar 2000mg and Cisplatin 50mg. She is being treated in Cedar Rapids, IA by PCI (Physicians Clinic of Iowa).
Lainy – I will have to bring up hospice some how. We all work including her husband so she is home during the day when she does not have her appointments by herself. Her not knowing what the doctors feel will be the time she has left, it may be hard to bring this up at this time. But I think this would be great to have a nurse come and make sure she is comfortable. I thought when hospice becomes involved the treatments stop…it may be hard for me to swallow this but it may just be what she wants.
Lisa & Lainy – I will definitely be talking to her about a second opinion, I think a great option for a second opinion would be the University of Iowa Hospital, they are only 20 minutes away. When she was first diagnosed we did ask PCI where she is being treated if they have dealt with this cancer before and they said yes. I did not ask how many cases. When we asked if we should get a second opinion, they said it was not needed. I feel they should encourage us to get a second opinion, this is a life not a car or appliance at home.
I really enjoy reading your posts and appreciate the time you have given to me already! Take care and have a good evening!
Tina
