tryingtohelp

Thank you, ladies. I’ll try to find it today. Hubby had a rough night, on his son watch. Started vomiting as well, restless, waking up almost every 30 min. I don’t understand why can’t it be peaceful??? He had suffered enough! Will call the nurse in a few minutes. Step son went to have a nap. So grateful to have him here, so we can split the duties and most important for moral support. The fact that he worked at military hospice few years ago gives me comfort as well.

All about the same, except hiccups intensified, a lot more often and sometimes sounds like he is struggling for breath. Therefore he is uncomfortable and keeps setting up in the bed. Asked for food once and I gave him apple sauce – ate few spoons. Nurse was able to flush his Picc line and since he asked for food, I will try TPN tonight. I just wish I could resolve the hiccups problem. Definitely can’t give him sugar – he will choke. Gave him more pain meds too. He is moaning from time to time. As usual, thanks for listening.

All about the same. Surprisingly he was more alert today – stayed awake for about 2 hours once, talked – mostly nonsense, but would answer simple questions. Sounded mostly clear as well. Yesterday he was happy to see his son – smiled big and gave him big hug, then acknowledged me and gave me hug. Even puckered up his lips for a kiss! Of course it was all mixed with some other moments of confusion, but at least had few good moments. He later thanked his son for coming.
Now my biggest dilemma is TPN. His son and his brother think we should stop it. I’m having hard time with it. Am I prolonging his suffering? Will he ever regain clear mind?
Any input is welcome! Sincerely, Alla

Thank you for the tip. Still waiting… Now Marty is just mumbling, can’t even tell what he is saying. Or not talking. But it touched me that he put his head on my shoulder when I was helping him to go to the bathroom…

Thank you, Marion. Hubby is still confused, pretty much on a different reality. Talks about something that makes no sense or about something that is not happening.
Sensitive
Got new problem – bleeding either from rectum or pee, not sure. Discovered after he used bathroom. Called hospice and they contacted doctor – most likely from bowel obstruction. Nothing they can do… Part of a process, they say.
Can’t wait for his son to get here, so we can evaluate the situation.

He woke up tonight and gallucinating… Seeing bats flying, kids eating, not recognising the room he is in and worse – trying to pull pain pump tubing, getting agitated. Then talked to me about getting up early and painting. Scared me! He did know I was his wife, but everything else didn’t make sense. Gave him ativan to calm him down. Called hospice – I think doze is too much. Nurse is on the way…
Told one of the kids 6 years old. He cried, then asked if he would have another new dad. What a fun night I’m having…

Sensitive!

Thank you, Lainy
It shocked me how much worse he got in one day, that’s why I’m hoping it’s meds. Yesterday he walked, took steps, walked to the bathroom, but today – confused, can’t carry on conversation, stares a lot. It took an hour to go to use a bathroom. On the way back we had to use wheelchair. I’m just surprised how quickly it changed. Is it possible to progress this quickly?
And I did absolutly nothing that I planned for. Constant phone calls, people come and go, deliveries and the main part – taking care of my hubby. But I must admit – seeing him like this, I think will make it easier for me to let go. I don’t want him to suffer. I just wish he regains his wit enough to talk to the kids and tell them what he needs to say to them. And tell me his wishes, as I still don’t know!
His older son is coming tomorrow and he is a PA, so hopefully he’ll help me with care and explain what is going on…