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Also does anyone have any recommendations for what can be done by the pain team for pain arising from the tumor encasing the coeliac plexus? Apart from morphine/opioid meds. Thanks!
Thank you Mary. Yes he has been in bed most of the time and has no energy to do anything. I was wondering if this is normal and when he might regain his strength?!?! Appreciate this must vary between individuals.
Thanks so much for your advice.
Thanks for your responses. This forum has been very helpful in understanding this disease.
My uncle has completed 2 cycles of chemo. Gem/Cis.
Is anyone aware of how quickly his symptoms of abdo discomfort and bloating may respond to chemo?
Can there be improvement of symptoms within 1 or 2 cycles? Or does it take longer for the chemo to have an effect?
He is struggling with the ongoing symptoms of abdominal discomfort/cramping ‘tightening pain’ & bloating. Its hard to understand whether the chemo is working or if there will be no response. Like many others we wait in anticipation.
Thank you Mary for your kind words.
Yes, it has been a very difficult time for all of us but particularly my uncle as the surgeons performed a full laparotomy.
Have other patients had similar presentations where the hepatic vessels have been involved? There is no involvement of any other intrabdominal organs we are told apart from the bile duct, pancreatic head and the hepatic vessels. There are no distant mets. Is anyone aware of any success stories where this type of cancer has been controlled with chemo+/_ radiation which has then led to the surgeons re attempting the whipples?
Thanks in advance