vickyp

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  • in reply to: Advanced CC patient – just diagnosed #26607
    vickyp
    Member

    My friends bili is 0.4 – not 4. oops.

    in reply to: Advanced CC patient – just diagnosed #26606
    vickyp
    Member

    I am so sorry to hear about your recent diagnosis. You seem to have a great attitude and I hope that helps. I am looking around this site because I too am a doc (pediatrician) and have a very close friend – 55 yo woman who was diagnosed in early Feb with CC. 13 cm tumor in her liver, multiple smaller liver lesions and pos nodes elsewhere. She is at Mass General and is doing very well after 3 cycles of Gemcitabine and oxaliplatnum. Bili was 2.8 now 4, Alk Phos 650 now 200, AST/ALT approx 130’s and now 40’s. And she feels great. She is also getting lots of acupuncture and taking chinese herbs.
    I am interested in hearing more about your treatment especially the pantimumubab. Best of luck with it all.
    I am sending all my best wishes and prayers to you and your family.

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