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  • in reply to: intrahepatic cc #50747
    vtimm
    Member

    Hi Jason – Just thought I would pop in and see how your mom is doing these days? Hoping all is well and she is well on the recovery road. Wishing you the best and all the blessing for this holiday season! Val

    in reply to: My Brother Passed Away This Morning #52298
    vtimm
    Member

    So sorry to hear of your loss – prayng for you and your family

    in reply to: Billirubin levels #52246
    vtimm
    Member

    Thank you so much for the info and inspiration – this site is great and all of you – as you know any little thing sets off the worry :) Thank you again :)

    in reply to: How did you know something was wrong? #51884
    vtimm
    Member

    I felt nausaus for quite some time and itchy – the itching was attributed to medication – then also finally had an ultrasound done of my gall bladder. The doctor said it looked like there was “sludge” in my gall bladder but no stones and I went on my way. …. proceeded to be nausaus constantly so went back in many months later – they did another ultrasound – said there may be some small stones and oh yeah – looks to be a cyst in your liver – but that’s common -we can refer or just watch – I had them refer me to a surgeon I had been to previously – after looking at my ultrasounds and also looking at an old MRI of my back – the surgeon came in with pictures and announced that yes my gall bladder should probly come out – but his main concern was the “common” cyst in my liver as in looking at the old scans it appeared it had been there for quite some time ….. his quote “if you were my daughter I would send you to Mayo so that is what we will do” Thanks be to God for him as he saved my life with that referral. Other than that I had nothing that would indicate a problem – my enzymes and all liver function tests were normal even when I got to Mayo I at first got the impression that I was going to be sent home – but after a full day of testing they decided we needed to go in and find out what this was. A resection specialist did the surgery the next day and called my husband half way through to tell him it was cancer ……

    in reply to: intrahepatic cc #50735
    vtimm
    Member

    Hi Jason – I went to Dr Kay Reid Lombardio at Mayo in Rochester – I also was diagnosed with Intrahepetic Cholangiocarcinoma – my tumor was sitting right on top of both main arteries in the liver – Dr Kay was fantastic – it was a very delicate surgery trying to get around the arteries – She ended up cutting my liver in half – removing 50% and left both arteries in tact – I would recommend you check into Mayo – they may be able to help your mom. Best wishes to you and keep us all informed on how things go! Val

    in reply to: Still in Pain – is this normal #48957
    vtimm
    Member

    Thank you so much for the input – the pain is not at the incision but in the general area – really just achy pain like a toothache which of course makes my mind run to the worse. Shari – Tomorrow I actually get to go to Vegas for work until mid next week – would next weekend work? thinking maybe some sunshine will help – ha …. again thank you all for the advice I think next week if still persisting I will call my doctor rather than wait for mid May.

    in reply to: Hello All #46764
    vtimm
    Member

    Thank you everyone for the wonderful welcome – how touching to have so many kind and encouraging responses! ShariMay I would love to meet you in person some time if you are up for it! Maybe lunch or something – it does sound like our stories are very similar. I am wondering did you have your surgery in Mayo? Is your oncologist there too? Also what made them decide to do chemo? My tissue around the tumor was negative so that is why they opted not to do chemo but it sounds that yours was too so I am curious. The surgeon I had thought they would do chemo but the oncologist said no. Anxious to hear from you and everyone else! Thanks again! Val

    in reply to: Hello All #46759
    vtimm
    Member

    Thank you so much Sharimay! I look forward to this. A friend of mine gave me this site said there was someone from Bismarck I am so happy to find you!

Viewing 8 posts - 1 through 8 (of 8 total)