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The news about Kris has broken my heart.
That was beautiful Lainey.
Lainy: I got the goose bumps reading what happened to you last night. I believe too and like you, if that happened to me I’d sleep like a baby.
Teddy will always be remembered by me. There were many personality traits Teddy had that reminded me of my husband who is healthy. Your advise, comments, and knowledge regarding this disease will continue to help me with my brother Ned who is in the battle. My sincere condolances to you and your family. I am glad Teddy’s suffering is over.
God Bless you, Victoria
Hurrah for you!! Nothing like being home.
Lainy’s suggestion regarding someone going with your mother to the doctor is very important. I’d like to add that if at all possible, rather than take notes, record the visit. That is what my brother did when he went to his appointment with the onc. dr. He was able to listen to the recording as often as needed to be sure he heard and my sister in law heard everything correctly. He also burned copies and sent them to family so we all knew exactly what the diagonosis was, the treatment plan, and prognosis.
I am so very sorry that your Dad has passed. I have read your posts often because I hope to be as caring and at peace like you and your family when the time comes for my brother (hopefully a long time away). You did all the right things. Please accept my sincere sympathy for your loss.
Oh boy, I’m relieved that my inner feelings about pink vs cc are shared by others.
I so very happy for your great news including Teddy sleeping better and being all nice and fresh!
I’ve been following your recent ordeal and I wish you much luck on this surgery. How awful to be vomiting all the time!
Good news/what’s working? Here is an update on my brother Ned. On Sunday 09/26/10 a benefit was held for by brother in Buffalo, NY (actually in a suburb where we were raised, Ned still lives there), called “A Night for Ned”. This benefit hosted 6 live bands as well as auctioned prizes and was very well organized. Three of the participating bands were groups Ned currently plays in and 2 of them are Beatle groups. “I get by with a little help from my friends” is certainly a fitting song that ofcourse was played. I know that 800 tickets were sold @$25 each and the tribute by all of his friends, fellow musicians, and family was the best medicine money can buy. It will be a lasting memory for all but most importantly has left my brother feeling on top of the world! Although I could not attend I live 1500 miles away in Florida, I will be visiting Ned starting this Wednesday and will get a copy of the filmed event. I will also get a chance to meet his onc dr. for his important visit to see what the scans show after 3 or 4 rounds of chemo.
Right now, Ned is happy, comfortably pain free and so I am happy too.
I just wanted to tell you that my brother who was diagnosed July 1 2010 with stage IV cc has mets to the bones (spine & pelvic) and abdomanal. He is tolerating his chemo (gemzar) very well. The xeloda chemo was a very high dosage and was removed from his regime a couple of weeks ago due to swelling of feet and ankles. The swelling did indeed go away after xeloda was stopped. He is getting his first scan this Wednesday the 29th to see if chemo has helped. He says he thinks it has made a difference because he no longer has pain in pelvic or shoulder blade. You are lucky you have not suffered with pain in spine and I pray for your continued good feeling. Victoria
Kris, my husband and I watched SUTC last night for awhile, but I got all weepy so we had to change channels. I’m glad to see an advocate such as you step up to the plate so that there can be more awareness for cc.
Thank you for taking the time to look at that website. My thinking was similar to yours about the obstacles that needed to be overcome. These teasing hints about the true cures being kept from us is very disturbing to me and I’m sure others also.
Although, I am the cc club member, my brother is the patient of this disease. I guess you call me the researcher so I do spend a great deal of my time reading the discussion boards and trying to learn, learn, learn. Your suggestion regarding “Knockout” is the 3rd or 4th I’ve heard and so I think it’s time to get that book.
VictoriaSeptember 2, 2010 at 7:43 pm in reply to: Younger sister diagnosed with Advanced CC – Still Shocked #39235
Where is the fluid build up? My brother has swollen ankles and feet since he started same chemo as your sister.