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Have the doctors at JH write a letter. One of the doctors my dad saw was out of network, but they were designated as a BCBS treatment center for rare and difficult to treat cancers. It worked for us.
I know how this goes. On one occasion, BCBS sent a notice that my dad owed a particular bill, once I called and told them he want’ paying, they backed down. Sometimes, I swear they trying to see what they can get away with.
Thinking of you! Jan
Agree with what others have said about bad luck, we were told “the same odds as winning the lottery” with my Dad. Glad to know I am not crazy when I have these same thoughts and get convinced that CC is in my future. Though I do believe that dwelling on such things can impact one’s health.
I have taken steps to be more healthy in an effort to stay off Rx meds, not that I had any condition, but I believe the fewer chemicals one takes in, the better.
Since my dad passed away, I try to eat organic food when possible, I watch my weight — I had about 15 or so extra pounds. I have started back on an exercise program and I loosely follow the FAT FLUSH PLAN, a diet centered on liver health. I don’t take the supplements, but I do drink the cranberry juice, lemon water, take the flax seed (my dermatologist had suggested it for psoriasis and it seems to be helping.) I watch my carbs and sugar.
That said, I am not overboard, I do dine out knowing that much of what I am eating does not fall with the above parameters. (I happen to live in a “granola” community, so there are organic restaurants if I choose. ) I am regimented on the exercise. Some time ago, I gave up diet soda and I have now almost given up regular soda–30+ days without one!
There are some threads on here about commonalities among CC patients From what i recall, high sugar intake and/or artificial sweeteners and statin prescriptions were some of the top ones.
I have followed yours and Dave’s story and been inspired how bravely you two fought this. My thoughts and prayers are with you and your daughter.
I will write the only thought in my head right now: that sucks. It is the same one that hit me with John Ur too. I guess because of their youth. I am sorry for Hans, but glad that the fight is over. Lord knows she gave it (and this board and everyone around her) her all.
Like someone else posted, it is news like this that makes coming to this board so difficult.
Teddy is on to his next adventure. I am so sorry for your loss. You both fought as hard as you could and handled it gracefully and have been an inspiration to so many. Godspeed Teddy! Hugs to you, Lainy.
I am sure as much as it was your honor, your father knew and appreciated all you did. I am sure he loves you for it all the more.
My dad had back pain for the last 6 months or so. His ran left to right (horizontally, if you will) across the middle to upper middle of his back. Because his started early, he was scanned for mets and found none. I suspect is may be like gall bladder pain and manifest in the back, I hope Teddy finds relief.
I am so happy to hear there is a new plan. I hope you know what an inspiration you are to others.
Positive thoughts, good luck and prayers all coming your way!
My dad was on morphine and ativan (lorazepam). Hospice started them simultaneously. Previously, he was very agitated and wrung his hands, etc. The ativan calmed him. Good luck!
I can only echo what others have said. It was a little over a year ago that I was in your shoes. You are indeed providing something precious and invaluable for your father and yourself. I pray for your continued strength.
Sorry to hear of your father’s condition. My father was also 86 when diagnosed. I think for patients that old, many doctors view surgery as risky and therapy as too debilitating. I can only speak from my experience, but for my dad, the choices were 6 months of side effects to maybe get 6 additional months. My dad chose to forgo treatment and enjoy the time he had left. He lived a little over 10 months from diagnosis.
Ultimately, the decision is your father’s and I am sure he knows he has your support.
Best of luck,
I am sorry to hear that Teddy’s journey is at this point. As helpful as you are to all the posters here, I can only imagine what strength you provide to him. I’ll keep you both in my thoughts.
Hydration, potassium and glucose could also be culprits.One of my personal speculations (and I am not a physician) is that since alzheimer’s is caused by an excess protein, and that protein is broken down and flushed by the brain and liver, if the liver isn’t functioning, it seems that could cause an excess thus leading to Alzheimer’s symptoms.
My father had the same issue before he passed away. It is so frustrating for the patient and the family. I can empathize. We checked all of the above and never really solved the problem.
I understand being blindsided by grief. My daughter had her first dance recital this weekend and one of the groups danced to Daddy’s Little Girl and I thought I was going to have to leave the auditorium.
I hope that you can feel your Mom’s presence as much as I feel my Dad’s. When I think back on “last year this time” I know that my father had ceased to be himself and it makes it easier to move to happier memories of earlier times. I know he is watching over us and that gives me comfort, but I do so understand how our wishes to have them here can be overwhelming.
I received an email from a friend today. Her partner is battling ovarian cancer. No treatment has worked and now, in addition to lymph node mets, she had lung and liver mets. Cancer is so unfair. This woman is 45 years old.
Take care and know that everything your son accomplishes in his new career is your mother living on in him.