wendyvp
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Louise,
I am thinking of you and hoping for a good result for your PET. I had mine yesterday and must wail until next Wed to get the results. Waiting is the pits because it take up a lot of time but for me it is one of the disadvantage of living in a rural and remote area!!I am sending lots of prayers.Wendy
Dear Mel,
You should have your tattoo. I had one when I turned 50 I had always wanted one. Also that year I decided I was going to do something each year I call it a “no regret”. Its all the things I have wanted to do but for whatever reason have put off, they don’t have to be big things some of them include going to see Bob Dylan (waited 30 years for that) Neil Diamond (20 years) moving to a warm climate (23 years). This year my no regret is veging out, watching the grass grow, not having to wear shoes and spending more time with the family. hmm that is more than one no regret.
I am glad now that I did that.to surgery or not to surgery that is the question. Having had my last lot only 8 weeks ago I don’t think I am ready to make this decision again, so soon. I am just viewing all the posts on this site so when I do see the oncologist next week I will have some info to assist me in making a decision. Wouldnt it be nice if someone else could make those decisions for us and they were always the right ones for us?
The oncologist comes up for a few days each month and is very available for contact if I need him between times. The travel is a bit much we only just got a MRI up here so a PET is sure to be a way off yet. I have put of Gawler until next year after the scan I just decided I wanted to spend as much time with my children as possible. Have started his diet and eating plans, mediation etc we will see what happens.
I have had a cow of a week, am I allowed to say that? I had my first CT scan post opp and my partner and I decided we would count off the clear scans (which I have to have three monthly) until we reached 2 years. Well blow me down I could not even make one clear scan. Of course being me and swimming aginst the tide I don’t believe it how can it grow back to 4cm in 8 weeks???? The good news is the lymph nodes are all clear. Off to Brisbane (3 hour plane trip) on Monday for PET scan then back to oncologist the week after.
On a bright note its another beautiful day in paradise. I plan on lounging in the pool and watching the grass grow and visiting my dear old mum.Elm.
you must try not to feel guilty. I’m a mum and I understand that my children (who live 3,999 klms away) all have other committments. From a mums point of view I would rather them looking after their families and coming to me to make memories. Then I am well enough to make memories with them.Dear Ladyria,
Welcome. Like you I am new at this.I had my opperation on the 1st August this year. I do not recall making a decision, or even weighing the risks, it was what my wonderful surgeon suggested and as I have faith in him I went ahead with it. For me I sailed through with only one day in ICU, six weeks later I feel great still get a bit tired and find 4 to 5 hours is the best I can do before having a nap, still have some minor pain but not too often.
The worst thing for me was that, as I live in a remote area of Australia, I had to be taken 2,000klms from home for the opp. This, for me, means all my family and friends were far away from me.
I wish you and your mum luck.
Wendy.
Gosh its nice to know I am already a survivour! that gives me a lot of inspriation and hope. I have taken six months off work to look after myself, lots of healty eating, mediation, telling the “thing” (as it is known in the household) that it is not welcome in my body and not welcome to come back from holidays. My ongologist looked at me as if I came from another planet when I told him this. We will see who is right him or me.
Thought: Life isn’t about waiting for the storm to pass. It’s about learning to dance in the rain. Dont know who said that.
Marion re the chat room. I just log on from time to time to see if anyone is there. As I live in what is know as a remote regional area in Far North Queensland we lack a lot of services and even my ongologist has to fly up once a month ( I count my self as lucky that I am the third person he is currently treating with cc and he has had others, maybe his prognosis is based on the others!!) . I just think the chat room is a really good way of keeping in contact and having someone to talk to, speically for those who don’t sleep too well. I would be happy to keep logged on and see if we can get it up and started again. Being new at this I could not offer much help but I feel that it is a really good way for people, including family and friends, to have access to others instantly.
Does anyone ever go into the chat room or am I just loggin wrong? Or maybe just because its 4am Australian time the rest of you all are asleep.
I dont understand all this talk about stents, chemo etc. I was diagnosed on the 31st July and on the 1st August had a liver resection that included loosing all the right side, parts of the left and all the surrounding lymphnodes. Despite the fact that I have now had 2 liver speicalist, oncologist, surgeon and my GP tell me it will come back within 12 months and my life expectencancy is only 2 years, I refuse to believe a word they are saying. Maybe that is because I feel so well or maybe it just because I am one of those people who always go in the opposite direction to everyone else. who knows.
I wish all you wonderful people all the best of luck am sending much love, peace, good vibes and prayers to you all.
Julie,
I am going to attend what apprears to be a similar program here in Australia in October, its a 10 day “living with cancer” program. Run by the Gawler foundation all about natural therapies, medication, diet etc. Will let you know how it goes. If your interested Ian Gawler is being featured on Australian TV ABC 1 on Compass (you can watch it via the net) this Sunday 10pm Eastern Standard Time Australia. He claims great sucess and there are plenty of success stories from people have attended his sessions. He was diagnosed with terminal cancer in 1975 and give only a few weeks to live, still going strong after all these years.
Wendy.I will let you know how it goes. For anyone interested who has access to the net they should be able to watch the Compass Program. Its on at 10pm Australian eastern standard time. ABC TV. Ian was diagnosed with terminal cancer in 1975 and given only a few weeks to live. He has develop a program of good eating, meditation etc a lot of people undertaking his support session have fully recovered (I am going to be one of them) I believe he as just received some funding to enable him to put some research together.
To everyone who resonded thank you so much. The only reason I wanted to contact people from Australia was because I am going to the Gawler foundation Living with Cancer (10 day live in program) and was wondering if anyone else had done this. For any one from Australia Ian Gawler is featured on ABC 1 Compass this Sunday night.
Marion I log in and read the disucssions each day. It is very inspiring to read people comments and stories. I have been given a very poor prognosis and as I was so well before having over half my liver and some lymph nodes removed, this has been a little bit hard to come to terms with. But I am positive and have told the surgeon that I will see him in 5 years!!.
