wesley
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Lainy there is actually a great deal of scientific research currently taking place around cannabinoids and there role to fight cancer. I think of anything I have researched thats the the main stream chemo route it has the most promise. I think its still to early to know what cannabinoid might have the most effect so I tend to just give them all.
When you faced with a terminal diagnosis my thought has always been what do you have to loose. Cannabis is not some new chemical, its been around longer than people and has been used to treat all kinds of things. I dont think its a major risk to try it
My mum has been on cannabis oil since diagnosis. It helps her sleep, especially the higher ratio CBD strains She eats well and has minimal side effects from the chemo drugs.
Being on both Chemo and cannabis its hard to say what is working best. All I know is in the last year her tumour has grown 2mm and she hasn’t really lost any weight. So she continues to take it.
She HATES being stoned, the bigger doses she takes at night and she has top ups of low dose THC strains during the day to boost appetite.
Its difficult to gauge dosages. This isnt lab made
I read when I first started giving it to her you needed 1G oil a day. Thats insane. That would not improve quality of life in such high doses and I cant see any real science to back it up. The oil she take is homemade in the kitchen from decent sources of bud. I wouldn’t risk buying it from anyone. She generally consumes 10-15g of oil a month in capsules. Some can be strong and some can feel like they do nothing she says. None the less she’s getting a regular dose.Hope that helps
Sorry to hear about your brother, 33 is so young. My mum was diagnosed in January 2016 at the age of 59. Its a bit like a loved one being handed a death sentence but not really knowing what they have done to deserve it.
So if he is jaundice they will look to fit a stent. Even after the stent is fitted it will take 2-3 weeks or so for the yellowing and itching to go. He will just have to ride it out im’ afraid. IV antihistamines will probably be given while in hospital, they will knock him for six though and he will sleep like crazy. Not a bad thing though!
Chemo has been the main topic of this year for the family. My mum completed 8 cycles of Gem / Cist the two drugs which have the best rates of success. Your brother is young enough that I cant see why they wont give him that combination as long as his kidneys are strong enough. My mum didn’t do to bad on the drugs to start with. Minimal side effects. No hair loss. A little sickness and tiredness. Sadly whats taken its tole on her is the infections caught from no immune system. Something thats still ongoing. We had a scary moment a few months back where she got a blood clot on the brain and all treatment was stopped. Thankfully she fully recovered with no lasting effects. She has also just come back from a really bad infection that lead to blood poisoning two weeks ago which she is also on the mend from. She has also had her second stent fitted last week,, which is a good run as they need replacing often. Sadly she catches every cough and cold going. We are just waiting to see when she starts the next cycle of chemo..
The point of me telling you all that is not to scare you, but take it from me, your brother will hate the site of hospitals soon. However if something seems wrong, a high temp, they are not feeling right. You simply MUST take them to the hospital, no matter how much resistance they put up. The chemo drugs are so strong, and can cause so many issues, you can’t risk it. At 33 I think your find he will cope well with the side effects and I wish him all the luck with whatever drugs they put him on.
Ok some good news, as thats what we want to know right, we see the crap statistics and spend hours worrying! In 11 months the last tumour scan showed the cancer had grown 2mm, and the tumour found on the lungs which made it no resectable for my mum had grown 1mm. Don’t give up hope.
RESEARCH.. get to know what your fighting. Cannabis has been a blessing during all this for my mum. Someone so anti drugs previously! The research is promising, of anything out there it seems to have the most scientific based results. Its not some miracle cure. It does help her sleep, eat well and generally combat the chemo drugs. She has been on cannabis oil since we found out! She also takes lots of supplements and despite her on going resistance, we do try and make her eat healthy foods.
We have not got into the clinical trial side of things yet. Of course one hopes were never have to, but its another weapon we have up our sleeve if and when we need it.
An update for everyone, my mum just had her half way chemo CT scan, it has come back that the tumour has shrunk, it is now smaller that the initial scan that detected it at 2cm
She was declined the whipple due the likely hood that that it appeared to have spread to the lungs and also possibly the liver (this way detected when he stent was fitted). They have now come back and said that it appears to be nodules on the lungs as they have no changed in size at all, and they are unable to detect anything on her liver.
She has also now gained 1.5KG in weight, which is down to the cannabis oil. I know this because on the times she doesn’t take it due to having to do something she does not want to feel stoned for, she hardly eats! She still struggles taking it, but none the less she herself knows the benefits.
This is all very positive, but again it has left us all frustrated! After being given a stage 4 terminal diagnosis in January and being refused the whipple, we are now told actually it hasn’t spread. So what stage is it? Can she now be considered for the whipple? We are in the UK. I hear lots of people talk about 2nd and even 3rd opinions in the USA. Should that be something we need to do? Are worry is it might stop her current chemo treatment?
Any advise is appreciated!
