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Viewing 8 posts - 16 through 23 (of 23 total)
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  • in reply to: Survival…Please tell us your latest milestone #64597
    whatnow
    Participant

    This website is a Godsend. When first told about liver cancer from my primary dr., my son and I were given the impression I had about 6 months (along with info from internet). At last chemo the NP said my tumors were shrinking, but I need to ask tomorrow how she knew that from blood tests. Still so much to learn. Tomorrow (chemo time) I’m gonna ask what CA-19 means.

    Tomorrow I have a free 15 minute acupuncture session during infusion. I just look at what is good about this silly thing and make the best of it all. Because of this website my kids are not as freaked out. Love, love, love and need the survival stories. Thanks

    in reply to: Help…Advice…Thoughts…Positive Energy… #93117
    whatnow
    Participant

    Being told my platelets were 71K and they might have to stop Chemo the next visit I hit the internet and decided on Pomegranate juice (2 glass per day) and Papaya Leaf tea (2 cups a day and with a little honey ok). The next week my platelets were 165K. I don’t know if this did anything. I also rested, laughed and got more exercise.

    Tell your dad Hi and to keep up the good fight

    Janet

    in reply to: Treatment Centers/Physicians #30000
    whatnow
    Participant

    Going to Phoenix (Gilbert), Arizona MD Anderson Cancer Center. Dr. Kundranda is the gastro specialist. He and the staff are very nice. I need to ask more questions.

    The Chemo on 3rd floor is wonderful. Great nurses, volunteers, food. drink, private rooms with TVs. Plus the place has valet parking and that makes me happy.

    janet.

    To the person before me DO NOT GIVE UP NOR LET YOUR MOTHER GIVE UP

    in reply to: FIFTEEN YEARS #69344
    whatnow
    Participant

    as a ‘newbe’ to this group, survivor stories (recent) are very soothing.

    Keep them coming

    Janet

    in reply to: ” Sally Toad” #93212
    whatnow
    Participant

    Truly this is what I need. Started Chemo the day after my birthday August 30, 2016. I feel just fine and Chemo is not making me sick (I almost hate to say this like it will make it start). No talk of surgery or when next scans. I need to ask more questions. You are a survivor and your “long” story was music to my ears.

    in reply to: New Port for wife #89325
    whatnow
    Participant

    what is the difference in a central line and a port? I have to get a port this Thursday.

    in reply to: Hi – new to the site. Just likely diagnosed with IHC #93032
    whatnow
    Participant

    I was looking for you (my computer skills need work) and here you are. I went to MD Anderson because my son lives in Gilbert, close to the place. The Doc said he specializes in liver cancers. The oncologist at Palo Verde suggested the gem/cit protocol. Read online this only gives 8 months. I need lots more than that. I’ve read good things about MD Anderson in Houston, but not so much for the hospital here. They take Medicare so that’s good. I don’t know much about Ironwood.

    No stents, just CT , PET scan, ultrasound. I’ll get a port next Thursday. I live in South Phoenix (equally far from everything) and would love to meet you when you get back. Have a fabulous trip and stay safe (hope you’re going for fun.)

    in reply to: Hi – new to the site. Just likely diagnosed with IHC #93030
    whatnow
    Participant

    Right there with you. I feel good (a little itchy and have lost weight) but have been told I have chalangiocarcinoma. Had PET scan (after 2 CT scans and ultrasound) and tumors in liver only, at first. But now have place that “lit up” from scan contrast, in neck. Had biopsy of that and am waiting. Always waiting. Was told from liver biopsy that the type of cancer in neck was not in liver. Had a parotidectomy then radiation several years ago.

    I liked oncologist my primary recommended but this thing is so rare I decided to go to MDAnderson in Phoenix for someone who specializes in this particular cancer. Mine is Interhepatic also. The American Cancer Society has good information, just don’t drink the koolaide about the stats.

Viewing 8 posts - 16 through 23 (of 23 total)