willow
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Percy,
You and your sis in law both had CC? What are the odds that you AND your sister in law had CC? I am so happy you are doing well though so sorry your sis in law did not fare well.I can’t comment on the hospitals in Ohio, sorry.
Tiff,
I dont know how you do it, but you sound great, though I know you don’t feel great. You have come a long way…28 rounds! Im So impressed you’re cooking a big Thanksgiving dinner!
I wonder can you explain what is considered a “round” of chemo. My sister has gem-Cis every other week (week off in between). Everyone seems to count differently what a cycle or round is. We are very early in this CC ride.
Best wishes getting the thrush under control. I work in a dental office so we treat that sometimes with RX nystatin rinse that you swish, then swallow.
Happy Thanksgiving,
WillowI believe this is important, though I’m sure it’s hard to get motivated to exercise when someone is fatigued! Seems Maria has really incorporated exercise (lots and hard) into her prescription for a longer, healthy life.
Tiff,
keeping you in my thoughts for these new spots to end up dead like the others… You have come far and have had many positive turns. Your attitude is great too, focusing on one thing at a time.Willow
Not that I’m aware of. Still, sounds like there are so many who seem to have same cancer type, location and stage and yet different responses to treatment and different complications that arise. The medical studies would be more scientific and of larger population of people with CC than just the ones on this discussion board. Admittedly, they’re hard to find and decipher (I’ve tried).
Christine, thinking of you as your road has been long and bumpy. You have really done so much to keep your health up from special diet, exercise, rest, etc. and should be proud. Praying your CT scan went well and you’ve had success with the Xeloda, despitre its awful side effects. How are you doing? Have you tried Nystatin mouth rinse for yeast inf (the one you swish with, then swallow)?
Not sure if this will help… From the general discussion article I posted on the problems Sandy has caused for cancer patients.
Here’s the url for the American Cancer Society: it’s http://www.cancer.org or call the toll free number 1-800-227-2345 and get info about what to do or where to go in times of disaster from the cancer information specialists.
Dear Mandy,
It’s hard to imagine that you could be thought of as “lucky” (how lucky is it to have a rare cancer?). Yes, many here consider you lucky to have had that aggressive surgery right off the bat; that is the best case scenario. I, like you, have so much to learn about this disease as my 50 year old sister was just diagnosed in early August of this year. At first, they wanted to rush into surgery, but then decided not to due to location of tumor and it’s rapid growth. They are doing chemo first, in hopes of surgery later. We were disappointed, but really trust the Dr and his reasoning. I like the idea that they are going to give your chemo after surgery just in case some cells remain. Best wishes to you and your young family as you recover from surgery!
WillowI was especially touched by the kindness of strangers in NY when I read this comment related to article above. I remember the gas rationing days!
“My two-year-old son’s fierce regimen of chemo for leukemia coincided with the gas rationing of 1979-80. He had to be at the hospital for chemo or radiation nearly every day, and was rushed there often for life-threatening pneumonias. When I told the gas station owner why we needed gas he said: “Leave your car parked here tonight.” When we returned in the morning the tank was full and there was a lollipop on the car seat. He did this as many times as we needed. The hospital parking lot attendant stopped charging us. He said our smile was enough. My son was NY City’s child, too. Thirty-six this year, he’s a kind man, always willing to help others. Keep on, lovely Suleika, you’re helping, too.”
Pam,
Thank you for sharing and happy Lauren is ok! My sister has only had about 4 treatments of Gem-Cis so far and has had allergic reactions to other things in the past (not chemo), so this info is helpful. She too, prefers not to read this site, so I’m gaining info to share selectively.
Cheers, WillowThat’s really interesting. Thanks for sharing and for keeping up with this less common treatment. Have many on this board had photodynamic therapy?
