I just finished participating in my first Relay for Life, 13 months after being diagnosed with stage IV intrahepatic cholangiocarcinoma. I had standard chemo (gem/cis) locally in Seattle from May to November 2015. My cancer then progressed, so I began a clinical trial at MD Anderson in Houston in January 2016. We fly to Houston every 28 days for care.
I’ve most appreciated all the fellow cholangio warriors I’ve met on Facebook. It has helped to have their support and other people to talk things over with; people who understand what I’m going through.