donna2015 was a year of great change and increased momentum for the Foundation.  As the year-end approaches, I am pleased to share with you some of the year’s highlights and accomplishments.

The Foundation expanded its research efforts with the launch of the CCF Research Fellowship Program. The goal is to raise awareness about cholangiocarcinoma and inspire innovative, quality research by young investigators committed to the study of this devastating disease.  Grant recipients were chosen carefully to ensure they build working relationships between researchers, institutions, and industry and share information, samples, and expertise with others in the field.  CCF funded four Fellowship proposals; one Conquer Cancer Foundation Young Investigator Award; and numerous other studies at renowned institutions such as the Mayo Clinic, MD Anderson Cancer Center, and the University of California, San Francisco totaling more than $450,000.

The second Annual Conference held in February in Salt Lake City, brought together subject-matter-experts in the field of cholangiocarcinoma including physicians, researchers, palliative care nurses, pharmaceutical and government representatives, and patient advocates to collaborate and exchange knowledge. 110 participants from 5 countries, representing 41 institutions and organizations were provided opportunities to promote dialogue, foster innovation, and share expertise with colleagues worldwide.

This year’s Campaign for the Cure raised over $200,000 – double the amount of the inaugural year – thanks to 365 very generous donors.  Quickly approaching are our year-end campaigns:  Giving Tuesday and Candles for the Cure, which we anticipate will also be hugely successful in raising much needed funds to support research, programs and services.

In this edition of the newsletter, you will also learn about one of our many outstanding volunteers, the story of a long-term cholangiocarcinoma survivor, and recent and upcoming events.  As planning gets underway for our tenth anniversary in 2016, we look forward to celebrating the great strides that have been made yet recognizing how much work still needs to be done.

Donna Mayer
Executive Director