Executive Team
Stacie Lindsey
Cholangiocarcinoma Foundation
FOUNDER & CEO
LEHI, UTAH
Stacie Lindsey
Cholangiocarcinoma Foundation
FOUNDER & CEO
LEHI, UTAH
Stacie’s brother, Mark Clements, was diagnosed in 2005 and ultimately passed away from Cholangiocarcinoma on January 19, 2007. Stacie advocated for her brother, extensively researched treatment options, and began networking with other patients, scientists, and healthcare professionals. From this experience, the Cholangiocarcinoma Foundation was born.
Stacie is a founding member and has served on the Board of Directors since its inception. Stacie resides in Lehi, Utah, where she has five children. She holds a Bachelor of Arts degree in Psychology from Brigham Young University and studied nonprofit leadership at Harvard Business School. Stacie is an active member of her church and community.
Melinda Bachini
Cholangiocarcinoma Foundation
CHIEF PATIENT OFFICER
BILLINGS, MONTANA
Melinda Bachini
Cholangiocarcinoma Foundation
CHIEF PATIENT OFFICER
BILLINGS, MONTANA
Melinda Bachini is a 14-year survivor of cholangiocarcinoma. She was treated at the National Cancer Institute with a clinical trial using Adoptive Cell Therapy.
Melinda is married and the mother of six children, grandmother to two, and two more on the way. She is passionate about patient advocacy and uses her experience with previous and current treatments to give great insight into patients participating in clinical trials. She shares her story with as many cancer patients as possible in hopes of giving support to those in need.
Melinda served as a patient advocate for the NCI Hepatobiliary Task Force, the NCI Patient Advocate Steering Committee (PASC) from April 2016 to December 2022. She is a patient advocate for the ECOG-ACRIN GI Committee, ECOG-ACRIN Cancer Research Advocacy Committee, the NCI Council of Research Advocates, and the NCCN Hepatobiliary Guidelines Panel.
Search in Progress
Chief Development Officer
ANY LOCATION
Search in Progress
Chief Development Officer
ANY LOCATION
Search in Progress
Juan Valle, MB, ChB, MSc, FRCP
CHIEF MEDICAL OFFICER
BOULDER, COLORADO
Juan Valle, MB, ChB, MSc, FRCP
CHIEF MEDICAL OFFICER
BOULDER, COLORADO
Dr. Valle most recently served as a professor and honorary consultant in medical oncology at the University of Manchester and The Christie NHS Foundation Trust in Manchester, UK. Dr. Valle was part of a team establishing the first standard of care for patients with advanced cholangiocarcinoma in 2009 and is a founding member of the International Biliary Tract Cancer Consortium. He chaired the UK National Cancer Research Institute neuroendocrine subgroup and was a member of the hepatobiliary and pancreatic cancer subgroups. His research focused on developing new therapies for pancreatic, biliary, and neuroendocrine cancers, and he has been instrumental in designing and developing many clinical trials.
Throughout his career, Dr. Valle has made significant contributions to the field, authored numerous publications, including over 300 scientific articles, and received multiple research grants to support his work. His research set the standard for patient care in cholangiocarcinoma.
Alli Ward
CHIEF OPERATING OFFICER
CATONSVILLE, MARYLAND
Alli Ward
CHIEF OPERATING OFFICER
CATONSVILLE, MARYLAND
Alli has dedicated nearly 30 years to the nonprofit sector, primarily supporting individuals affected by cancer. She is passionate about collaborating with others and fostering their development.
Alli holds a Bachelor of Arts in Social Work from Salisbury State University. Prior to her nonprofit work, she gained experience in social work and spent over a decade in business processes and analysis.
Residing in Catonsville, MD, Alli lives with her husband, two stepdaughters, and their three-legged dog. She enjoys outdoor activities, camping, traveling, and cooking in her free time.
Team
Kaylin Allenbrand
DIRECTOR OF CORPORATE PARTNERSHIPS
DENVER, COLORADO
Kaylin Allenbrand
DIRECTOR OF CORPORATE PARTNERSHIPS
DENVER, COLORADO
Kaylin is dedicated to delivering growth and expansion of programs, driving strategic industry partnerships, and propelling the mission of the Foundation.
With over a decade of experience in the healthcare sector, particularly within pharmaceuticals and medical devices, Kaylin has a deep passion for patient and clinical support, advocacy, and innovation. Her passion for problem-solving and entrepreneurial mindset have been instrumental in navigating the intricacies of the healthcare industry while identifying opportunities for growth and collaboration.
Kaylin graduated with a Bachelor’s degree in Business Administration from the University of Florida and resides in Denver, Colorado, with her husband and very spoiled dog, Rylee.
Tiffany Brimer
Executive Assistant to the CMO
JACKSONVILLE, FLORIDA
Tiffany Brimer
Executive Assistant to the CMO
JACKSONVILLE, FLORIDA
Tiffany is a seasoned executive assistant deeply rooted in the healthcare sector, skilled in managing complex schedules and refining administrative operations with a steadfast commitment to enhancing patient experiences. Motivated by her mother’s brave fight against HER2 breast cancer, she embodies empathy and resilience in every endeavor. Tiffany holds a Bachelor’s degree in Health Service Administration and lives in Jacksonville, Florida, with her son and two cats, Billy and Simba. Outside of her professional realm, she cherishes engaging in themed book clubs, exploring new travel destinations, and delighting in thought-provoking podcasts and culinary adventures.
Claire Condrey
VOLUNTEER MANAGER
FORT WORTH, TEXAS
Claire Condrey
VOLUNTEER MANAGER
FORT WORTH, TEXAS
Claire has over 15 years of experience supporting volunteers and planning events. She began her career working in ministry and loves using her skills at CCF. Claire greatly enjoys the opportunity to equip and encourage others as they use their special skills and unique experiences to positively influence others’ lives.
A native of Baton Rouge, Louisiana, Claire received her BA in Sociology from Louisiana State University. Shortly after graduating, she moved to Texas for work and loves both states. Claire has an energetic toddler who joyfully consumes her free time. She also has a formerly energetic dog that tries to keep up with the pair.
Sydney Correa
EXECUTIVE ASSISTANT TO THE COO
AUSTIN, TEXAS
Sydney Correa
EXECUTIVE ASSISTANT TO THE COO
AUSTIN, TEXAS
Sydney joined CCF in 2023. She is driven by her passion for streamlining workflows, enhancing efficiency, aiding others, and maintaining a deep commitment to creating a better world.
Outside of work, you’ll find her tending to her herb garden, playing tennis, or enjoying the company of her golden retriever, Chai, in Austin, Texas.
Mary Dalling
SENIOR ACCOUNTANT
HERRIMAN, UTAH
Mary Dalling
SENIOR ACCOUNTANT
HERRIMAN, UTAH
Mary is a Certified Public Accountant licensed in Utah with a Master of Accounting Degree and 25 years of accounting experience, including in the nonprofit sector. She has been with the Foundation since 2010 and has witnessed its tremendous growth over the years. Mary is grateful for the opportunity to use her knowledge and skills to assist with furthering the foundation’s mission.
Mary and her husband, Eric, reside in Herriman, Utah, and have four children and four grandchildren. In her free time, she enjoys running, bread making, serving in her church, and hanging out with family.
Allison Deragon
DIGITAL MEDIA MANAGER
CINCINNATI, OHIO
Allison Deragon
DIGITAL MEDIA MANAGER
CINCINNATI, OHIO
Allison is a marketing professional with experience in social media management, content marketing, and branding. During Allison’s senior year of college, she connected with the Foundation through a family friend and joined the team of Social Media Volunteers. She continued to be involved by taking a full-time role with the Foundation managing social media and has moved into overseeing all digital media, including advertising strategy.
Allison received a Bachelor of Science in Communications with an emphasis in Digital and Social Media Marketing from Brigham Young University—Idaho. She resides in Cincinnati, Ohio, with her husband, Cody, and their son, Liam. They are expecting a baby girl later this year. In her free time, she enjoys the outdoors and working out.
Carli Good
DIRECTOR OF INDIVIDUAL GIVING
KANSAS CITY, MISSOURI
Carli Good
DIRECTOR OF INDIVIDUAL GIVING
KANSAS CITY, MISSOURI
Carli has over 20 years of nonprofit leadership and development experience. She has worked with prominent healthcare organizations such as the American Heart Association, Susan G. Komen, and the Leukemia & Lymphoma Society. Passionate about health equity, she has consistently advocated for accessible, affordable health care and led fundraising and donor relations efforts.
Carli and her family live in Kansas City, Missouri. She is often found cheering at her kids’ soccer games, watching their theatre productions, or enjoying the outdoors with her dogs, PK & Evie.
Kim Kempf MA, LPC
DIRECTOR OF VOLUNTEER ENGAGEMENT
SAINT JOSEPH, MISSOURI
Kim Kempf MA, LPC
DIRECTOR OF VOLUNTEER ENGAGEMENT
SAINT JOSEPH, MISSOURI
Kim has a master’s degree in counseling and guidance from the University of Missouri-Kansas City and is a Licensed Professional Counselor in Missouri. She has nearly three decades of nonprofit program management and leadership experience. As a rare cancer survivor, Kim understands the healing power of community and connection and is dedicated to ensuring that patients and caregivers receive the support they deserve.
Kim resides in St. Joseph, Missouri, with her mom, two dogs, and a cat. Her three children and two grandchildren are her pride and joy. She’s an avid Kansas City Chiefs fan and enjoys watching General Hospital, Food Network, and HGTV. She loves spending time with her friends and dining out.
Myria Kelly
COMMUNICATIONS PROJECT MANAGER
CHICAGO, ILLINOIS
Myria Kelly
COMMUNICATIONS PROJECT MANAGER
CHICAGO, ILLINOIS
Myria first worked with CCF in 2015 when she was in charge of organizing the travel and lodging arrangements for the annual conference in Salt Lake City. While booking travel for the Foundation, she had the opportunity to speak with scores of doctors, researchers, foundation staff, and patients. She was consistently awed by the reach, support, and advocacy the foundation provides. In 2020, Myria joined the organization as its Program & Operations Coordinator. Now, Myria manages many Communications projects to ensure the smooth delivery of materials for programs and the public.
Myria lives in Joliet with her husband, three children, and two dogs. She is an avid runner and ran the 2021 Chicago Marathon as a member of Team CCF.
Laurie Kikel
DATABASE & REVENUE OPERATIONS MANAGER
SARATOGA SPRINGS, UTAH
Laurie Kikel
DATABASE & REVENUE OPERATIONS MANAGER
SARATOGA SPRINGS, UTAH
Laurie brings over 22 years of experience in customer service and management to her role as Database & Revenue Operations Manager at CCF. In 2011, Laurie faced the challenges of caregiving firsthand when she lost her father to pancreatic cancer. This experience ignited her passion for supporting the cancer community.
In 2012, Laurie joined CCF as a part-time assistant to the CEO and has since become an integral full-time member of the CCF community, making a difference in every position she manages.
As the Database and Revenue Operations Manager, Laurie oversees data management and accuracy, contributing actively to revenue processes and generation strategies. She is committed to implementing best practices in data integrity and leveraging data-driven insights to optimize operations and inform strategic decision-making.
Outside of work, Laurie is a dedicated wife and mother of four residing in Saratoga Springs, UT. She is passionate about helping others and providing service to those in need. She is a new grandma and enjoys spending time with her family.
Emma Mach
PATIENT OUTREACH MANAGER
FORT WAYNE, INDIANA
Emma Mach
PATIENT OUTREACH MANAGER
FORT WAYNE, INDIANA
Emma is proud to serve as the Patient Outreach Manager, and she’s been part of the team for three rewarding years. Her personal connection to the cause comes from her mother-in-law, 14-year CCA survivor Melinda Bachini. Whether organizing symposiums or representing CCF at conferences, she aims to ensure patients feel supported every step of the way. Outside work, she enjoys newlywed life and loves traveling with her husband to make the most of every moment. She and her husband are expecting twins later this year.
Trish Mars
ANNUAL GIVING MANAGER
LEXINGTON, KENTUCKY
Trish Mars
ANNUAL GIVING MANAGER
LEXINGTON, KENTUCKY
Trish worked in cancer philanthropy for several years before joining CCF. Her husband, Ken, was diagnosed in 2018 with intrahepatic cholangiocarcinoma. After chemotherapy and radioembolization treatments, he was placed on a liver transplant list and received a transplant on Thanksgiving of 2020.
Trish serves as an advocate and caregiver for her husband and utilizes CCF as a resource.
Due to her personal and professional experiences, Trish jumped at the chance to join the staff in 2022. Trish resides in the Horse Capital of the World, Lexington, Kentucky, and loves attending the Fall and Spring Thoroughbred Horse Races at the legendary Keeneland Racetrack. She holds a Bachelor of Arts degree in Health Care Administration from Midway University
Meredith McGuffage
COMMUNITY FUNDRAISING & EVENTS COORDINATOR
CHICAGO, ILLINOIS
Meredith McGuffage
COMMUNITY FUNDRAISING & EVENTS COORDINATOR
CHICAGO, ILLINOIS
Meredith is responsible for recruiting and managing Team CCF participants at events nationwide, including the TCS New York City Marathon and the Bank of America Chicago Marathon. She also encourages the community to share their passion for raising awareness and being active. Before joining CCF, Meredith was the race director for two local 5Ks that raised funds for melanoma and pediatric brain cancer. Running and fitness have always been her passion.
She is married and the mother of two boys. She and her family live in the Beverly neighborhood on the south side of Chicago.
Amy Medley, LMSW
SENIOR DIRECTOR OF PROGRAM OPERATIONS
NASHVILLE, TENNESEE
Amy Medley, LMSW
SENIOR DIRECTOR OF PROGRAM OPERATIONS
NASHVILLE, TENNESEE
Amy is a Licensed Master Social Worker with an extensive background in health and well-being program management and clinical social work in the nonprofit and for-profit sectors. Amy received a Bachelor of Arts in Social Welfare from the University of Wisconsin–Madison and a Master of Science in Social Work from Columbia University. She has a passion for supporting and improving the quality of life of patients and their families.
Amy is a Wisconsin native residing in Nashville with her husband and Rotweiler named Chicken. Amy reads a new book weekly and enjoys drinking coffee, spending time outdoors, and trying new restaurants in her free time.
Frida Nobles
ADVOCACY EXECUTIVE ASSISTANT
ORLANDO, FLORIDA
Frida Nobles
ADVOCACY EXECUTIVE ASSISTANT
ORLANDO, FLORIDA
Frida is a Mississippi native but currently resides in the state of Florida where she is a very proud mother of 2.
Prior to joining the Advocacy Team here at CCF as their Executive Admin, Frida worked at Universal Orlando Resort for over 10 years primarily in the same capacity. Universal boasts an atmosphere of Professionalism, Service and FUN one that Frida hopes to bring to her new family here at CCF. As happy as she was to be a part of the Consumer and Hospitality Industry, Frida is overjoyed to return to her roots and be a part of a team of Service and Support based work.
Frida’s has previously worked at the following Non-Profits, Big Brothers Big Sisters of MS, State of MS Families First Programs and Willowod Developmental Center. She is a graduate of both Jackson State University (JSU, BA) and University of Phoenix (UoP,MS).
Ashokkumar A. Patel, MD
DIRECTOR OF CLINICAL RESEARCH & DATA
PALO ALTO, CALIFORNIA
Ashokkumar A. Patel, MD
DIRECTOR OF CLINICAL RESEARCH & DATA
PALO ALTO, CALIFORNIA
Ash holds a BSc in Medical Technology and Biology, an MD, and has over 20 years of experience in medical informatics, biobank management, and data analytics. Leading our research, Ash oversees the International Cholangiocarcinoma Research Network (ICRN) and manages industry relationships, grants, data dissemination, and conference representation.
Ash’s drive for cancer research stems from personal experience, and he is committed to finding new treatments. A dedicated family man originally from the East Coast, he now lives in the San Francisco Bay area. Ash enjoys traveling and making memories with loved ones.
Rick Pollock
DIRECTOR OF CREATIVE SERVICES
STANSBURY PARK, UTAH
Rick Pollock
DIRECTOR OF CREATIVE SERVICES
STANSBURY PARK, UTAH
Rick’s brother-in-law, Mark Clements, was diagnosed in October 2005 with cholangiocarcinoma. Rick has been involved with the Foundation since its inception.
He grew up in Ogden, Utah, and attended the University of Utah, where he earned his Bachelor’s Degree in Mass Communication. While employed as the Marketing/Promotions Director for KENZ-FM, he met his wife, Amy, after she won a radio station trip to Hawaii. Rick worked for the Salt Lake Organizing Committee during the 2002 Winter Olympic and Paralympic Games.
He has been designing print materials professionally since 1992 and digital materials, including websites, since 1998.
Lourdes Rocha-Nussbaum MA, CCLS
DIRECTOR OF PATIENT SERVICES
GOLDEN, COLORADO
Lourdes Rocha-Nussbaum MA, CCLS
DIRECTOR OF PATIENT SERVICES
GOLDEN, COLORADO
Lourdes has been connected to CCF since 2010, after her father was diagnosed with the disease. She began volunteering after his passing in 2012, helping in different areas as needed, and later focusing on the Vietnam Veterans program in 2019.
Lourdes earned her Master of Arts degree in Developmental Psychology from Teachers College at Columbia University. She is a Certified Child Life Specialist by training with over 15 years of experience advocating for children and families in various capacities.
Lourdes is a California native who is currently living in Golden, Colorado.
Ramona Steele CPA, MBA
DIRECTOR OF FINANCE
SAINT JOSEPH, MISSOURI
Ramona Steele CPA, MBA
DIRECTOR OF FINANCE
SAINT JOSEPH, MISSOURI
Ramona has worked for nonprofits for the last 11 years and has 33 years of accounting and finance experience. She is a certified public accountant with a Bachelor of Science in Business Administration with an emphasis in Accounting from Missouri Western State University and a Master’s in Business Administration from Northwest Missouri State University. Ramona and her husband Mike live in Saint Joseph, Missouri, and have two grown children. She enjoys traveling, spending time with friends, and cooking. Ramona loves using her smoker for meats, cheeses, pizzas, and side dishes.
Jen Sorensen
DATABASE & REVENUE OPERATIONS COORDINATOR
HERRIMAN, UTAH
Jen Sorensen
DATABASE & REVENUE OPERATIONS COORDINATOR
HERRIMAN, UTAH
Jen joined the CCF team in Fall 2021, bringing over 15 years of finance and operations expertise to her role. Known for her commitment to efficiency, attention to detail, and accuracy, Jen plays a crucial role in data management and revenue processes.
Having experienced firsthand the impact of cancer on families, Jen understands the importance of sharing knowledge and educating others to improve outcomes.
Outside of work, Jen is a devoted wife and mother who is actively involved in her church and community. She enjoys spending her free time outdoors, reading, and traveling. Jen and her family reside in Herriman, Utah.
Karen Templeton, MA
SENIOR DIRECTOR OF COMMUNICATIONS
BIRMINGHAM, ALABAMA
Karen Templeton, MA
SENIOR DIRECTOR OF COMMUNICATIONS
BIRMINGHAM, ALABAMA
Karen has over two decades of experience in public relations, media strategy, and risk and crisis communications. She has spent a significant amount of time in her career building and executing communication strategies for higher education institutions. Working with faculty researchers and at a government regulatory agency has provided her with opportunities to translate crucial scientific information for specific stakeholders and the public. As a volunteer, she has spoken to elected officials on Capitol Hill about the importance of funding cancer research. She’s inspired by her dad’s untimely passing from pancreatic cancer and is honored to work at an organization dedicated to improving outcomes for patients and their families.
Karen loves going on adventures with her husband Brian and their children Joseph and Cora. She has a penchant for travel, book clubs, and shelter dogs.
Cindy Thomas
VOLUNTEER COORDINATOR
BOISE, IDAHO
Cindy Thomas
VOLUNTEER COORDINATOR
BOISE, IDAHO
Cindy has been with CCF since 2018. She initially worked to connect dedicated volunteers to the critically important programs at CCF and now works with CholangioConnect mentors, helping them provide mentorship to patients and caregivers. She is inspired by how CCF community members think of helping others in times of great difficulty. She loves working with immensely uplifting and inspirational individuals who give so much despite the challenge of cholangiocarcinoma.
Cindy lives in Boise, Idaho, and is a wife and mother to four girls and grandmother to one with a granddaughter on the way. Cindy received a Bachelor of Science degree from Brigham Young University in Zoology/Pre-Med and enjoys church service, gardening, and a good dance party.
Candace Tise, MPA
COMMUNITY FUNDRAISING & EVENTS MANAGER
WINCHESTER, VIRGINIA
Candace Tise, MPA
COMMUNITY FUNDRAISING & EVENTS MANAGER
WINCHESTER, VIRGINIA
Candace works with CCF’s generous and enthusiastic supporters to organize and implement a variety of creative fundraisers that generate financial support crucial to fulfilling CCF’s mission.
Candace has worked for various nonprofits with missions ranging from hunger relief to mental health services, crisis intervention, and equitable education access. She holds a Bachelor of Arts in Communication from Virginia Tech and a Master of Public Administration from Penn State University. Candace resides in the Blue Ridge Mountains of Virginia with her husband, Joe, son, Turner, and beloved cat and dog.
Elise Weidman
ADMINISTRATIVE ASSISTANT
LAYTON, UTAH
Elise Weidman
ADMINISTRATIVE ASSISTANT
LAYTON, UTAH
Elise attended Utah State University, earning an Associate of Science, and Weber State University, earning a Bachelor of Science in Marketing from Weber State University. Prior to joining the CCF team, she was an Event Coordinator Assistant at Weber State University.
In 2018 Elise adventured across the country to participate in a Disney Internship, where she worked as a food and beverage Cast Member at Pinocchio Village Haus in Magic Kingdom. She resides in Layton, Utah, with her dog Bella. She enjoys reading, traveling, dinosaurs, and Disney.
Sarah Williams
EXECUTIVE ASSISTANT TO THE CEO
ST. PETERSBURG, FLORIDA
Sarah Williams
EXECUTIVE ASSISTANT TO THE CEO
ST. PETERSBURG, FLORIDA
Sarah joined CCF in the Spring of 2023 as our Executive Assistant to the Chief Development Officer. With over fifteen years of experience supporting senior executives across various nonprofit organizations, Sarah excels in streamlining operations and enhancing productivity. Her dedication to delivering high-quality work, effective communication, meticulous organization, and proactive problem-solving have earned her accolades throughout her career.
Driven by her passion for assisting others in achieving their goals, Sarah was drawn to CCF’s mission. She is deeply committed to making a meaningful difference and actively contributes her skills and expertise to furthering our cause.
Residing in Florida, Sarah cherishes spending quality time with her husband, Matt, and their two children, Wyatt and Phoebe. In her leisure time, Sarah indulges in listening to audiobooks, engaging in household projects, and showering affection on the numerous animals that enrich their family life.
Board of Directors
Teresa M. Delcorso-Ellmann
CHAIR
MONTCLAIR, NEW JERSEY
Teresa M. Delcorso-Ellmann
CHAIR
MONTCLAIR, NEW JERSEY
Teresa’s husband, Stephen Ellmann, was diagnosed with Cholangiocarcinoma in November 2015. The family credits information and resources provided by the foundation with helping to connect Steve with five different liver-directed treatment regimens that were life-extending until his passing in March 2019.
Teresa is a higher education professional and, for the past 30 years, has worked for Rutgers, the State University of New Jersey, in the fields of scholar and research development. She is an Assistant Dean and the founding director of the School of Graduate Studies innovative peer mentoring fellowship advising service. She holds a BA in International Affairs and History from the University of Mary Washington and an MA in History from Rutgers. Teresa joined the board of the Cholangiocarcinoma Foundation in 2021.
Dean Meyer
VICE CHAIR
WILMINGTON, DELAWARE
Dean Meyer
VICE CHAIR
WILMINGTON, DELAWARE
Dean is Chief Information Officer at Delrin. For more than 25 years, Dean has led global organizations in leveraging modern technologies to improve business performance.
Dean’s wife Jan is a survivor of CCA. They have been active volunteers, fundraisers, and donors to the Cholangiocarcinoma Foundation since her diagnosis in 2018. Together Dean and Jan have done a great deal to raise awareness for the disease, including founding and hosting the highly successful Quack Out Cholangio 5k to Crush Bile Duct Cancer which has raised more than $100,000 for cholangiocarcinoma research.
Since 2019, they have funded the Margaret M. Brown Research Fellowship in honor of Jan’s mother who passed from CCA. Dean joined the Board of the Cholangiocarcinoma Foundation in 2021. Dean and Jan reside in Wilmington, DE.
Dan Blum
TREASURER
HOUSTON, TEXAS
Dan Blum
TREASURER
HOUSTON, TEXAS
Dan is an Investment Manager based in Houston that focuses on developing and managing quantitative, systematic strategies on behalf of clients. He is a Managing Member and Founder of Glenhaven Capital LLC, a Commodity Trading Advisor, as well as the Managing Member and Founder of Evan Capital LLC, which is a Registered Investment Advisor in the State of Texas. He holds a BA from Vanderbilt University and an MBA in Finance from the NYU Stern School of Business.
Dan’s mother, Linda, passed away from cholangiocarcinoma in 2007 following a 10-month battle. Dan, along with his father, Mel, and sister, Amy, have been involved in the advocacy for cholangiocarcinoma research since 2007 in various capacities. Dan became involved with the Foundation after attending his first annual meeting in 2016. Dan is also highly involved at MD Anderson as a member of the Advance Team, which is a group of young professionals that serve as ambassadors for the institution.
Patricia Maxin
SECRETARY
HOUSTON, TEXAS
Patricia Maxin
SECRETARY
HOUSTON, TEXAS
Patty received an M. Ed in Administration and Supervision from the University of Houston. She has dedicated her professional career focused on the education of students with medical needs. In addition to her teaching responsibilities, she has a long involvement with various Houston charities and NGOs. In 2014, Ms. Maxin retired from teaching in order to care for her husband, Mike Lu. He was diagnosed with cholangiocarcinoma the previous year. Following her husband’s death in 2015, she became involved with the Foundation. Patty currently serves as a patient and research advocate, as well as the Program Director for CholangioConnect.
Jack Callaway
MEMBER
LONDON, ENGLAND, UK
Jack Callaway
MEMBER
LONDON, ENGLAND, UK
Jack Callaway is a financial services executive with 30+ years of Wall Street, mergers and acquisitions (“M&A”) and financing experience. Jack began his investment banking career in New York City in 1989 at Rothschild, a leading global financial advisory M&A boutique. He later moved to Lehman Brothers in 2000 where he became its Global Co-Head of Telecom M&A. After joining Barclays in 2008, Jack moved with his wife, Julienne, and three children, James, Emeline and Maddy, to London, England and was promoted to Global Co-Head of Barclays Telecom, Media and Technology Investment Banking Business. He later became its Chairman.
Jack graduated with a Masters in History from Oxford University and B.A. from Yale University. Jack became involved with the Cholangiocarcinoma Foundation when his wife, Julienne, was diagnosed with cholangiocarcinoma in 2018. She passed away after a brave 16-month battle. She was only 53. Julienne’s strength and courage inspired Jack to join the Board of the Cholangiocarcinoma Foundation at the end of 2021.
Ross Green
MEMBER
NEW YORK, NEW YORK
Ross Green
MEMBER
NEW YORK, NEW YORK
Ross is an Investment Professional with a New York based alternative asset manager where he focuses on making investments in private energy companies. Previously Ross worked as an investment analyst in the energy private equity group of Och-Ziff Capital Management and is active in working with a number of small companies outside of the energy space.
Mr. Green received a B.S. in Mechanical Engineering from Washington University in St Louis. Ross began working with the Cholangiocarcinoma Foundation in 2014 after his father, Bart Green, was diagnosed with cholangiocarcinoma. Ross joined the board of the Cholangiocarcinoma Foundation in 2017.
Stacie Lindsey
Cholangiocarcinoma Foundation
FOUNDER & CEO
LEHI, UTAH
Stacie Lindsey
Cholangiocarcinoma Foundation
FOUNDER & CEO
LEHI, UTAH
Stacie’s brother, Mark Clements, was diagnosed in 2005 and ultimately passed away from Cholangiocarcinoma on January 19, 2007. Stacie advocated for her brother, extensively researched treatment options, and began networking with other patients, scientists, and healthcare professionals. From this experience, the Cholangiocarcinoma Foundation was born.
Stacie is a founding member and has served on the Board of Directors since its inception. Stacie resides in Lehi, Utah, where she has five children. She holds a Bachelor of Arts degree in Psychology from Brigham Young University and studied nonprofit leadership at Harvard Business School. Stacie is an active member of her church and community.
Jason Scott, PhD
MEMBER
LOS ALTOS, CALIFORNIA
Jason Scott, PhD
MEMBER
LOS ALTOS, CALIFORNIA
Jason is the Managing Director of the Retiree Research Center at Financial Engines. Financial Engines is America’s largest independent Registered Investment Advisor working with more than 750,000 individual clients and managing over $90 billion in assets. The Retiree Research Center is dedicated to helping retirees plan and adjust to an uncertain retirement characterized by an unknown lifespan, unknown health level and unknown investment returns.
Jason has published a number of journal articles in the area of retirement economics. His research has focused on optimizing investment strategies in retirement, behavioral biases in decision making, and optimal mortality-contingent insurance contracts. Jason received a B.S in economics from Texas A&M University and a Ph.D. in economics from Stanford University.
Jason began working with the Foundation shortly after his wife, Andrea, was diagnosed with cholangiocarcinoma in 2013.
Liz Warner
MEMBER
NEW YORK, NEW YORK
Liz Warner
MEMBER
NEW YORK, NEW YORK
Liz Warner is currently a Vice President at Iron Park Capital where she focuses on providing debt and equity capital to companies across all sectors. Previously, she spent six years at KKR, where she focused on origination and execution for private credit transactions across the capital structure for both financial sponsors and corporate clients. In addition to leading and monitoring new investments, she was also responsible for working out various legacy portfolio positions. Prior to KKR, she was at Nomura Securities. Liz holds a B.A. from the University of Pennsylvania.
Liz’s father was diagnosed with cholangiocarcinoma in 2018 and passed away shortly after at the age of 62 and she joined the Board of the Cholangiocarcinoma Foundation in 2021.
Tyler Bridegan
MEMBER
HOUSTON, TEXAS
Tyler Bridegan
MEMBER
HOUSTON, TEXAS
Tyler resides in Houston and holds the position of Director of Data Privacy & Security Enforcement at the Texas Attorney General’s Office. Prior to this role, he worked with prestigious law firms including Wiley Rein and Latham & Watkins in Washington, DC. During his tenure there, he represented clients across various stages of privacy, telecommunications, and cyber cases, while also providing counsel to companies on current and emerging privacy and cybersecurity laws. Tyler’s professional background also encompasses service at the Federal Communications Commission, where he served as a legal advisor to Commissioner Simington and as an attorney-advisor in the Media Bureau. Originally from Broken Arrow, Oklahoma, Tyler is an alumnus of the University of Oklahoma and the Georgetown University Law Center.
Colleen Mather
MEMBER
WINNETKA, ILLINOIS
Colleen Mather
MEMBER
WINNETKA, ILLINOIS
After completing her undergraduate studies at Loyola University, Colleen embarked on a dynamic career journey, gaining valuable experience in communications and marketing roles at Allstate and JPMorgan Chase. Most recently, she served as the Senior Communications Manager for The Mather Group.
Colleen’s late husband, Stewart, was the esteemed founder and chairman of a prominent financial advisory firm based in Chicago. Tragically, her husband, Stewart, passed away from CCA in November 2020 at the age of 42.
Residing in Winnetka, IL, Colleen is a devoted mother to her four children.
Emeritus Members
Demetrios Anaipakos, 2006-2010
Lillie Chen, 2014-2016
C. Ray Clements, 2006-2010
Bruce Coppock, 2016-2022
Joni Craighead, 2006-2008
Barbara Dupont, 2017-2021
Lawrence Goodfield, 2012-2017
Sara Hinkley, 2006-2012, 2017-2021
Mark James, 2006-2008
Dawn Duchene Lyon, 2010-2017
Dr. Rudolph Pena, 2006-2009
Rick Pollock, 2007-2012
Marion Schwartz, 2009-2016
Sean Turbeville, PhD, 2013-2017