Strategic Plan

Dear Friends:

We have made significant progress in the 16 years that we have worked together to advance our shared vision of a world free from cholangiocarcinoma. Our community has collaborated in remarkable ways, and we have begun to change the trajectory of this rare cancer. In the last two and a half years alone, we have celebrated five new, FDA-approved treatments that would not have happened without the grit and courage of our brilliant scientists and clinicians, our industry colleagues, and, of course, the patients and caregivers who are at the center of everything we do.

CCF’s extraordinary board and staff have spent the last year finalizing a new strategic plan to realize our mission of finding a cure and improving the quality of life for cholangiocarcinoma patients. I am delighted to share the result of this labor of love – a bold and concrete action plan focused on the core values of CCF: Patients First, Collaboration, Innovation, and Urgency. This plan is designed to be a community guide as we work toward the next major milestones in defeating cholangiocarcinoma.

This strategic plan is the culmination of months of iterative work. We engaged our diverse stakeholder community in this process – including cholangiocarcinoma patients and families, scientists and clinicians, and industry leaders. We are grateful to so many individuals who generously gave of their time to help up with this process.

We are already hard at work on initiatives and programs that tie directly to the elements of this plan and will be reporting regularly on our progress.

On a personal note, I am so proud of everything we have been able to accomplish as a Community.   I am energized and motivated by the collective commitment to our vision and mission this plan reflects.

Stacie Lindsey
Founder & CEO
Cholangiocarcinoma Foundation