We’re planning the 2021 Annual Conference and we need your feedback!

We are hard at work planning our virtual Annual Conference, to be held March 31—April 2, 2021. One of the key components of the Conference is Patient Day, where we seek to provide our community with information, support and a welcoming space to share, learn and have fun! We have created a survey to help us better understand what patients and caregivers need and want. This survey provides you with an opportunity to give input on both content and structure of our time together. We want to hear your ideas on how we can make our virtual Patient Day the best one yet!

Please take a moment to complete the survey so we can provide you with the best experience possible.

Thank you and we look forward to receiving your responses and creating a wonderful Patient Day experience!