–
June 4, 2020
Please join us this Thursday, June 4 for a Patient Only Support Group led by Melinda Bachini, 4pm-5pm (EDT). This session is not recorded and is intended as a safe open forum. Patients only, please.
–
June 11, 2020
What is #MapItForward & the Real World Genomics Study
Recent medical advances support the need for all cholangiocarcinoma patients to receive biomarker testing as part of their treatment, however the rate at which patients are actually receiving this testing in the real world is unknown. Real-world evidence is needed to capture the rates at which this crucial testing is being performed outside of the clinical trial setting.
This study will describe and characterize real-world patterns of biomarker testing in cholangiocarcinoma patients including the frequency, timing, and nature of testing performed. This is an important first step in understanding cholangiocarcinoma care patterns and advocating for better access to care and informing future drug development and you can help!
Learn more here: https://cholangiocarcinoma.org/mapitforward-the-real-world-genomics-study-launch/
Webinar: #MapItForward & the Real World Genomics Study Launch!
–
June 18, 2020
Please join us for a Caregiver Only Support Group led by Katie Glenn, 4pm-5pm (EDT). This session is not recorded and is intended as a safe open forum. Caregivers only, please.
June 22, 2020 – June 24, 2020
more information at: https://www.aacr.org/meeting/aacr-annual-meeting-2020/
–
June 22, 2020
Want to learn more about Moving for the Cure? Need ideas for an activity? Wondering how to kick off your fundraising? Join the development team via ZOOM, Monday, June 22 at 8 pm EST for the Moving for the Cure Pep Rally!
The Pep Rally will include guest speakers with their own personal fundraising tips. The CCF development team will offer insight and ideas on ways to promote your fundraising page, how to engage your family in an activity, and how to have fun!
Click here to register: https://cholangiocarcinoma-org.zoom.us/meeting/register/tZ0tcOqgrjMuG9Fq5AEU15AZFgAdtqxHTSNk
June 22, 2020 – June 24, 2020
more information at: https://www.aacr.org/meeting/aacr-annual-meeting-2020/
June 22, 2020 – June 24, 2020
more information at: https://www.aacr.org/meeting/aacr-annual-meeting-2020/
–
June 25, 2020
Join us this Thursday at 4:00pm ET to hear from Dr. Lipika Goyal from Boston Mass General who will be talking on clinical trials. Please feel free to submit any questions (to info@cholangiocarcinoma.org) you have regarding clinical trials in cholangiocarcinoma ahead of time.
Register Here: https://cholangiocarcinoma-org.zoom.us/webinar/register/4815887867301/WN_2G-ceNgiQfW2lrFw7841Zw