Introducing Myself – Michelle
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Michellle….I would like to follow the others and welcome you to our site. In addition to the wonderful advice you have received and will continue to receive from our members, you may also want to take a look at our home page. Here are some links :
For the newly diagnosed:
http://cholangiocarcinoma.org/the-disease/newly-diagnosed/
Free complimentary Book or e-mail download:
http://cholangiocarcinoma.org/news/foundation-resources/
Register for a CURE
The International Cholangiocarcinoma Registry
http://cholangiocarcinoma.org/professionals/research/patient-registry/As the others have mentioned please don’t hesitate from reaching out to us. We are in this together.
Hugs,
MarionHi Michelle, Welcome to the site. You will find that the folks on here are incredibly supportive and have a wealth of information from their own experiences or from the experiences of a loved one. As Lainy said, do not get caught up in the stage that you have been given. Every one is different and you should not place yourself into any statistic based on that.
My advice to you is to research on this site and other reputable sites on the web. Keep as positive an attitude as you can…it’s hugely important. Keep busy. Allow people to help you and pray for you if that is your belief. Be good to yourself. Some days will be easier than others. Don’t get down on yourself if you don’t feel like eating or doing much of anything. It’s your life…
God Bless you Michelle. Please keep us posted.
Melinda A.Michelle-
I have similar issues with low platelets. Normally, if they are at least 100 I get a full dose. If above 90, the onc will generally approve a full dose. Less than that she will give me a 75% dose.
Duke
Hi Michelle,
Welcome to the site. Sorry that you had to find us all here and I am sorry to hear what you are going through. But real glad that you have joined in with us all as you are certainly in the best place for support and help and you will get loads of each from everyone here. Like Lainy says, information is vital and the better informed you are the better equipped you will be when it comes to making decisions about everything. Have you sought out a second or thrid opinion about possible treatment options?
Please keep coming back and let us know how everything goes. You are not alone in this, we are here for you and we care.
My best wishes to you,
Gavin
Dear Michelle, welcome to the best place to be for CC support. May I ask where you are being treated? It is very important to be at a hospital/ONC who has treated CC before. The other very important thing to know is that knowledge is our best tool for fighting CC. If there is something you wish to know right away we have a Search engine at the top of the page and just type in a word and previous posts will appear about that subject. Do not worry about your Stage as we have had many members who were DX at stage IV, had chemo and were able to have surgery. Remember that attitude is everything and once you see that the chemo is working or even a different treatment plan, your fright will turn to fight. We are here for you, so please keep us updated as we truly care.
Hi Michelle,
Welcome. I’m glad you have joined us, but sorry to hear why. You are definitely in the right place. Please let us know how you are doing and if we can help in any way with info and support, we are here for you.
Hugs,
DarlaMy Name is Michelle. I found out that I have Stage 4 Cholangiocarcinoma on August 11th or so. I have been undergoing chemo since August 26th. I am taking Gemzar and Cysplatin. I am unable to do 2 weeks in a row because 2nd week my platelets are always too low to get the second round. Waiting to find out how I react so I can try to get involved in a test study. ~much love
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