International Cholangiocarcinoma Patient Registry (ICPR)

The International Cholangiocarcinoma Patient Registry (ICPR) is a collaborative effort between patients and the global research community. Patients can participate in unique and urgent research efforts by sharing your de-identified health records. You can join over 2,000 cholangiocarcinoma (bile duct cancer) patients in this critical effort now.

Patients and caregivers join here.

_LOGO-Registry

BENEFITS of PARTICIPATION

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How registration works

How does it work?
  • Click on “Register Now"
  • Read and provide your consent to join
  • Create your free profile
  • Confirm your diagnosis and your provider(s)
  • Upload your photo ID to verify your identity for your healthcare provider

After you create your profile you will receive your personal invitation to complete the survey portion of the registry via email

The International Cholangiocarcinoma Patient Registry is powered by Invitae Ciitizen