new member

Thank you for comments.

I will add information in the general section at

“Metastatic cholangiocarcinoma with hepatic and nodal involvement”

about further information we get

Regards

Sally

Dear Sally,

I am sorry to hear of Jennifers passing, please accept my sincerest condolences. My thoughts are with Jennifers family.

Gavin

Hello
On doing a search on your forum I came across this thread and I know who Jennifer was

She was a close family member who passed away in March 2011

Sally

Hi Jennifer

Although I’m a long way away from you, we are very similar in diagnosis….I’m 53 and was diagnosed with CC in March of 2009, left lobe and gallbladder removed April 2009. Only one lymph node had signs of cancer, but doctors thought they removed it with a clear margin. A small tumor in the right lobe was burned.

No signs of cancer at my 3 month CT scan following chemotherapy. My subsequent CT scan 4 months after that showed that the small tumor that had been burned was back, and possibly metastasizing to the lungs, but the doctors are debating on that one. It was too microscopic to tell.

I will be starting my 3rd of 4 treatments in chemotherapy next week. Our hope is that my next CT scan and PET will show nothing in the lungs and that the tumor will have shrunk so surgery can be done again.

All my best on your PET scan results and with the Onc appt. You will find that there is a wealth of information on this site to learn from. AND you will get it straight, not mixed up medical speak. At least you found us and are in the right place.

Linda Z.

Welcome, Jennifer!! Welcome, Tommy!! You won’t be alone here – we do understand how shocked & worried you will be & I really hope you’ll both keep coming back to talk, share, vent, let off steam & get as much info as possible.

My very best to you both & your families.

Julia

Hi Jennifer and Tommy,

Welcome to the site although I am both sorry that you had to find your way here. I hope that you will both keep coming back here as you will get tons of support from us all here. And please feel free to ask as many and all questions that you might have and we will do our best to help if we can.

As Darla says, we all understand as we have been touched by CC as either patients or carers for family members. In my dads case, he was diagnosed with inoperable CC back in the summer of 2008. Please keep in touch and lets us know how things go.

My best wishes to you both and to your familes as well,

Gavin

Hi, my name is Tommy, my wife was diagnosed April 15, 2009. I have never been on a computer in my life. I bought this one for my wife to mess around with. I have been exploring ever since. My wife, Judy, is doing fair. I don’t know if she will be able to do any more chemotherapy. Her platelets just don’t seem to be coming back up since her last treatment on Feb. 1st. She went through 30 days of radiation and 9 rounds of infusion chemotherapy. I am really starting to worry about her, and her pain. Judy’s Dr. and Nurses have been great, and I think I just need to talk to some real people that I can understand. Thank You for your time and listening to me.