Discussion Board Forums Introductions! new member

Viewing 15 posts - 1 through 15 (of 15 total)
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  • #37356
    sally2011
    Member

    Thank you for comments.

    I will add information in the general section at

    “Metastatic cholangiocarcinoma with hepatic and nodal involvement”

    about further information we get

    Regards

    Sally

    #37355
    lainy
    Member

    Dear Sally, I am sorry to read of Jennifer’s passing as she now joins our list of Heros. To really acquaint yourself with the magnitude of CC I would read up on as many old posts as you can. This site is overflowing with brave and caring people and know that your Family Member was one of them.

    #37354
    gavin
    Moderator

    Dear Sally,

    I am sorry to hear of Jennifers passing, please accept my sincerest condolences. My thoughts are with Jennifers family.

    Gavin

    #37353
    marions
    Moderator

    Sally….I am so sorry to hear of Jennifer’s passing. My heart goes out to you and your family
    Hugs,
    Marion

    #37352
    sally2011
    Member

    Hello
    On doing a search on your forum I came across this thread and I know who Jennifer was

    She was a close family member who passed away in March 2011

    Sally

    #37351
    linda-z
    Member

    Hi Tommy,

    Welcome Tommy. Nice way to “mess” around with the computer! You found us, and that is a great thing. You will find real people here that will absolutely give you the straight information you can use.

    Don’t give up hope. Often times the doctors we are dealing with only know a little bit of the great amount of information out there. The people on this site are from all over the world and can offer much info. Hang in there and tell Judy to not give up hope. There is always someone here to listen.

    Linda Z.

    #37350
    linda-z
    Member

    Hi Jennifer

    Although I’m a long way away from you, we are very similar in diagnosis….I’m 53 and was diagnosed with CC in March of 2009, left lobe and gallbladder removed April 2009. Only one lymph node had signs of cancer, but doctors thought they removed it with a clear margin. A small tumor in the right lobe was burned.

    No signs of cancer at my 3 month CT scan following chemotherapy. My subsequent CT scan 4 months after that showed that the small tumor that had been burned was back, and possibly metastasizing to the lungs, but the doctors are debating on that one. It was too microscopic to tell.

    I will be starting my 3rd of 4 treatments in chemotherapy next week. Our hope is that my next CT scan and PET will show nothing in the lungs and that the tumor will have shrunk so surgery can be done again.

    All my best on your PET scan results and with the Onc appt. You will find that there is a wealth of information on this site to learn from. AND you will get it straight, not mixed up medical speak. At least you found us and are in the right place.

    Linda Z.

    #37349
    devoncat
    Member

    Welcome Tommy and Jennifer. You found us and that is a great start. It might seem overwhelming at first, but we are here for you and there is a wealth of experience and knowledge here. If you have specific questions, please ask and let us know how things are going. Best of luck on your journeys.

    Kris

    #37348
    lalupes
    Participant

    Welcome, Jennifer!! Welcome, Tommy!! You won’t be alone here – we do understand how shocked & worried you will be & I really hope you’ll both keep coming back to talk, share, vent, let off steam & get as much info as possible.

    My very best to you both & your families.

    Julia

    #37347
    lainy
    Member

    Hi Tommy and welcome to our family. Sorry to hear about your wife and just so you know sometimes second opinions are very helpful. A fresh look at everything might bring about new suggestions for treatment. You might want to go to our search engine at the top of the page and write in “platelets” and I am sure some information will appear for you. Don’t give up and please come here often as you will get a lot of support from many wonderful members.

    #37346
    gavin
    Moderator

    Hi Jennifer and Tommy,

    Welcome to the site although I am both sorry that you had to find your way here. I hope that you will both keep coming back here as you will get tons of support from us all here. And please feel free to ask as many and all questions that you might have and we will do our best to help if we can.

    As Darla says, we all understand as we have been touched by CC as either patients or carers for family members. In my dads case, he was diagnosed with inoperable CC back in the summer of 2008. Please keep in touch and lets us know how things go.

    My best wishes to you both and to your familes as well,

    Gavin

    #37345
    darla
    Participant

    Hi Jennifer, I too want to welcome you and to wish you the best when seeing the oncologist tomorrow. I am sure Janet or one of the others from Australia will be posting here soon, too.

    Hi Tommy, Glad you have found us, too. Welcome to our “family”. We are a great bunch and are here to listen and also to help & support each other. We all understand. There is more information on CC on these boards than any where else. We have all been touched by it in one way or another and the amount of knowledge here is amazing.

    I hope you will both keep in touch and let us know how things are progressing. Take care.

    Darla

    #37344
    tommy
    Member

    Hi, my name is Tommy, my wife was diagnosed April 15, 2009. I have never been on a computer in my life. I bought this one for my wife to mess around with. I have been exploring ever since. My wife, Judy, is doing fair. I don’t know if she will be able to do any more chemotherapy. Her platelets just don’t seem to be coming back up since her last treatment on Feb. 1st. She went through 30 days of radiation and 9 rounds of infusion chemotherapy. I am really starting to worry about her, and her pain. Judy’s Dr. and Nurses have been great, and I think I just need to talk to some real people that I can understand. Thank You for your time and listening to me.

    #37343
    lainy
    Member

    Hello, Jennifer and welcome to our wonderful family, although sorry you had to find us. Much good luck at the ONC tomorrow and you are not alone in Australia as we have others from your area. Actually we are all here for you now! Please let us know what the ONC says. We have a lot of experience here on our Board plus our Search Engine at the top of the page. You will find the most caring and loving people from around the World right here in our family.

    #3442
    jennifer
    Member

    Hi, I am a new member 56yo from Australia. Diagnosed July 2009. Left lobe and gall bladder removed July 2009 no spread of cancer else where. Four months later cancer returned to remaining liver. January 2010 treated with SIRS-spheres. MRI 8 weeks later most of the lesions positively affected by radium with necrosis occurring. PET scan and another MRI taken a couple of days ago, seeing Oncologist tomorrow.

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