February 2, 2013 at 6:50 pm #68549
Bridget….our site provides a direct feed to clinicaltrials.gov
It is geared to Cholangiocarcinoma trials, but as you know there are crossovers to pancreatic chemo regimens and that of other cancers.
There also is Molecular Testing which, may in turn lead to a targeted therapy.
Hoping for others to chime in also.
MarionFebruary 2, 2013 at 2:50 pm #68548
That is the trial that excluded him bc of stent and risk of inflectionJanuary 31, 2013 at 8:23 am #68547
This is the study:
MarionJanuary 31, 2013 at 4:04 am #68546pcl1029Member
How about that TIL trial at NIH .
God bless.January 30, 2013 at 5:06 pm #68545
Hi Everyone — Well my husband’s CT scan is basically stable. Some of his lymph nodes were smaller, one is a bit larger. His CA 19-9 continues to go down. It’s now at 427. We are going to stay on this course because we are on a compassionate care grant from Celgene and receive the treatment for free (Aetna wouldn’t cover it, and it’s $2,000 per treatment). Plus, he looks and feels great.
But, we are desperately looking for what to do next. We wanted to get into the immunology clinical trial in MD, but because he has a metal stent he is excluded. Apparently there have been a lot of infections with patients with stents. His stent is in a silicone sleeve, so if we really wanted to push it we could find a doctor who would remove it. But, his onc thinks his duct would close right up again. Let me know if you can think of anything — especially anything to put us into a remission for awhile or kill the beast.
Thanks for being hopeful with me!January 24, 2013 at 7:13 am #68544
We will find out more at ASCO 2013. Here is a link:
MarionJanuary 24, 2013 at 4:56 am #68543pcl1029Member
This combo provide about two more month in survival for pancreatic cancer patients.
It is again very expensive for such a short period of addition of life. Who knows Medicare will agree to cover the cost when Celgene applies for the FDA approval later this year for pancreatic cancer.
God bless.January 23, 2013 at 7:51 pm #68542kris00jParticipant
We love that word: shrinkage! Prayers going out for a good scan.January 22, 2013 at 5:44 am #68541willowParticipant
That’s great to hear that your husband is responding well to this combo!January 22, 2013 at 4:05 am #68540
Sweetgreen…congratulations on the significant shrinkage and thank you for sharing this great news with us. Fingers are crossed for an excellent CT scan result and please, keep us posted.
MarionJanuary 21, 2013 at 6:04 am #68539lainyParticipant
Dear SweetGreen, thank you so much for the great update. Wishing your husband a ton of good luck on this week’s Scan and please do let us know the results! We LOVE that shrinkage word.January 21, 2013 at 4:22 am #7867
My husband has distal bile duct cancer with lymph node involvement and abdominal mets. He is a one year survivor. We have never gotten 100% assurance that it isnt pancreatic so his doctor likes to try treatments for either disease. On Folfox, his markers went up. After one round of gemzar-Abraxane, they were down by more than half. Just wanted to share the good news. Celgene had good results with a trial of Abraxane and gemzar. He is having a CT scan this week and will hopefully have shrinking lymph nodes. We could use good news. Abraxane makes you lose your hair!
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