Abuela (grandma) just diagnosed!

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  • October 11, 2011 at 7:55 pm #52536
    marions
    Moderator

    senaida….finally your abuela’s pain has been brought under control. Your family is providing her with the love she needs and hospice is giving her the comfort she deserves. And, how we enjoy these precious moments of togetherness!
    Hugs are coming your way,
    Marion

    October 11, 2011 at 7:47 pm #52535
    senaida
    Member

    okay so as the days go by, I see her getting weaker and more content with the thought of leaving us behind. she said shes not in pain anymore just tired! we are spending as much time with her as we can! I love being around her. Time is passing and getting harder for everyone!!!!!

    October 6, 2011 at 7:16 pm #52534
    marions
    Moderator

    senaida….pain is to be expected, but it shuld diminish with time. Her “looking better” should transfer into less pain real soon.
    All my best wishes,
    Marion

    October 6, 2011 at 1:12 pm #52533
    senaida
    Member

    I have not seen my grandma for a day, but the day after her surgery. She was looking better. She is still in a lot of pain if she does not take her medication.

    I’ll be there today and I will update you on how she is feeling!

    Thanks

    October 3, 2011 at 9:54 pm #52532
    marions
    Moderator

    senaida…then your aubuela must be feeling much better already. Can’t wait to hear the good news after the visit with her.
    All my best wishes,
    Marion

    October 3, 2011 at 8:29 pm #52531
    senaida
    Member

    Today my abuela had another procedure today. They removed the external drain finally!!!

    Im headed to see her and get an update after work today!

    I’ll keep you all posted!

    Senaida

    October 2, 2011 at 4:13 pm #52530
    senaida
    Member

    whew…..

    that was incredible! I hope to have an as wonderful experience as you. Today is a good day. She is on lots of medication, but she seems like she is happy and enjoying the day.

    Last night she had a sad moment and it was hard to see her go through that.

    Its like a roller coaster.

    thanks for being a supportive outlet!

    senaida

    September 30, 2011 at 9:58 pm #52529
    lainy
    Spectator

    SENSITIVE You Seemed to really want to know so here it is:

    Dearest Senaida, I am so happy that you are meeting as a family next week to say and do what ever it takes to give Peace to your Abuela. She has given you years of comfort and love and you wouldn’t really want it to be any other way. It’s like your gift to her. I believe that in most cases once the Goodbye is said and the loved ones know you are strong enough to say, “We will be OK”, you are giving permission for the time to come, whenever that time is. You are letting her know that she is not abandoning you. And in return you will feel a strength you did not have before.
    As for what is to come? Teddy was on a lot of Morphine so pain was totally controlled. He had compazine for nausea so that was under control as well. The only thing I can say is after that it was just a matter of sleeping more, easily tired and not eating much at all. We just let it flow. When he was hungry he had the Carnation shake. The day he went to the Hospice Facility (4 days before he passed) he wanted me to drive him and I did. His last day was spent pretty much just lying there. His last 5 hours or so his eyes were open but not really seeing us. Then the most beautiful thing happened, he held his arms up and encircled loved ones who had gone before. He would hug them and even pucker his lips to kiss them. Once he said, “Oh Mama” she had passed 30 years ago. My daughter and I were with him and felt it was such a priviledge to witness this remarkable and beautiful event for what was about 2 hours. Within minutes after he passed his whole face changed to that of a young man, in the way that all wrinkles left, all signs of being ill left…he was peacefully beautiful. And that is how it all occured. I am sorry for being graphic but to us it was Peaceful and amazing.Best of luck next week.

    September 30, 2011 at 8:59 pm #52528
    senaida
    Member

    Thank you for that information. Yesterday was a hard day for me to see my abuela in such a down state of mind. she didnt smile very much and didn’t laugh. We are all getting together next week as a family. it should be a bitter sweet time. Part of me thinks that as she sees everyone and we all assure her that everything will be ok and that we ill be ok when she passes, the time may be closer than I want.

    I am trying to hope for the best but at this point its about managing pain and showing her comfort and support.

    I have read the book given to me by hospice but are there any other specific signs we should be looking for?

    thank you everyone
    Senaida

    September 29, 2011 at 8:01 pm #52527
    gavin
    Moderator

    Hi Senaida,

    Thanks for this. Have you heard back from hospice today yet and if so what did they say/ Also, I would mention the saliva and mucas that your Gran is spitting up as well. I just posted this link on nausea and vomitting on another thread but I will post it here as well for you as it contains some good information.

    http://www.macmillan.org.uk/Cancerinformation/Livingwithandaftercancer/Symptomssideeffects/Othersymptomssideeffects/Nauseavomiting.aspx

    Please keep us updated on your Gran and my best wishes to you both.

    Gavin

    September 28, 2011 at 9:15 pm #52526
    senaida
    Member

    This is a recent issue! Its been happening the last 4 days, she was concerned the medicine but I was assuming it was part of the disease itself. She has also been spitting up a lot of mucus and saliva for some time now. We have called hospice and I’m sure they will getting back to us sometime today!

    thanks

    September 28, 2011 at 9:07 pm #52525
    gavin
    Moderator

    Senaida,

    When did your Gran start this vomiting, is it recent or has she had issues with this before? My dad had a lot of troubles with nausea and there are a load of meds that can help with this. My dad tried a wide range of and various combinations of meds to deal with this withy varying amounts of success. Have you got in touch with your Gran’s hospice care team to report this and if so, what have they said? And if not, I strongly recommend that you contact them today about this. Please keep us updated here.

    My best wishes to you and your Abuela,

    Gavin

    September 28, 2011 at 4:57 pm #52524
    senaida
    Member

    Thanks Marion!
    I’ll keep you all posted!

    ~deep breaths~

    September 28, 2011 at 4:23 pm #52523
    marions
    Moderator

    senaida….vomiting can be relentless with progression of this disease to the point that some people may not be able to hold down their saliva. Please, make sure to point this out to the hospice personnel. They need to be very aggressive with their medications.
    Please, stay in touch
    All my best wishes,
    Marion

    September 28, 2011 at 4:10 pm #52522
    senaida
    Member

    Yeah I will make sure that hospice knows. We keep a pretty detailed log as to what her side effects are since we have such a large involved family. I enjoy hearing things from your end….. thank you

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