Adjuvant chemo/radiation

Discussion Board Forums General Discussion Adjuvant chemo/radiation

Viewing 15 posts - 16 through 30 (of 32 total)
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  • #40254
    haiminh
    Member

    Hi all,

    It is quite common that the surgeons do not appreciate chemotherapy or radiation if they have a successful resection. My Mum’s Dr also did try to convince us to avoid an adjuvant chemo as he was afraid that it would affect her health, even worse than doing nothing. However we decided to do it, because it was a 50-50 case. We are never sure that the cancer is going away, so we need to do something to get a piece of mind. And thanks God, she has been fine till now, except the CA 199 increasing in 3 recent months.

    Hi Dale,

    From your posts, you are so lucky that it has been 6 years till now. Wish you always healthy and happy :). I have a question: During this 6 years, has your CA 199 ever increased?

    Minh

    #40253
    dmeek
    Spectator

    Maggie, I agree with Marion. There is nothing to lose but a phone call. The MD Anderson site is: http://www.mdanderson.org/. There is a “Contact Us” link with info on how to contact them. It is an excellent cancer center.

    I know your mom already had surgery. But my surgeon there was Dr. Nicolas Vauthey. He, along with the others on my team, are with the Gastrointestinal Cancer Center department.

    Dale

    #40252
    marions
    Moderator

    Maggie…I would call and ask to make sure. There is nothing lost with a phone call. Others may also be able to help you out with more information.
    Best wishes,
    Marion

    #40251
    mlidoudou
    Spectator

    Thanks Dale and Marion,

    I would very much like to consult other cancer centers about my mom’s case. Do you think places like MD Anderson could be consulted without seeing the patient? I have all her reports from ultrasound, MRI, CT scan, PET scan and post-surgery pathology report. Your advice is very much appreciated.

    Maggie

    #40250
    marions
    Moderator

    Maggie…..I agree with Dale. Pride has no place in the cancer business. I meant to ask you: are you able to retrieve your mom’s medical records? If so, then I would make a few appointments with different physicians. Nothing should stop you from consulting with specialists in the field. Once more opinions have been gathered, a decision will be based on acquired knowledge. Good luck.
    Marion

    #40249
    dmeek
    Spectator

    Maggie

    #40248
    mlidoudou
    Spectator

    Dear Dale,

    Thanks for your info and advice. My mom was not treated at a cancer center. She was treated by a private surgeon who appears to be not as update on the medical oncology aspect of cancer. This was mainly indicated by his lack of knowledge on extra vs intrahepatic CC when I asked him about my mom’s case. I think he is a good surgeon for CC and he is extremely busy with the many patients in Hong Kong. However, I have doubts about his scientific knowledge on the management of CC other than surgery. He even told my mom that there is no oral drug to treat CC, but obviously xeloda can be given orally. When I asked him about the possibility of adjuvant therapy using xeloda, gemzar, tarceva and radiation, he felt that he was challenged. He did mention that if I consult an oncologist, he/she would likely agree to chemo treatment just because of wanting to do business. He also said that radiation would be harmful to my mom’s liver which is already weak after surgery. By the way, she had 70% of her liver removed. How much of your liver was removed? How many cycles of radiation did you receive?

    Maggie

    #40247
    dmeek
    Spectator

    Maggie

    #40246
    mlidoudou
    Spectator

    Dear Dale,

    My mother had her surgery one month ago in Hong Kong and she also had clear margins, but like yours, they were small (0.1 cm in some areas). However, her surgeon is against chemo and radiation because he thinks that she would suffer and the treatment would not help in lowering her chance of recurrence. He is so stubborn that he does not wish us to consult other oncologists in HK.

    I still have not completely abandoned the possibility of adjuvant therapy for my mom. I am wondering how long after your surgery did you have your radiation and xeloda?

    Maggie

    #40245
    marions
    Moderator

    You are welcome, Dale. I wish that we had more time to connect while at the conference. We have to make up for it, next time.
    Best wishes,
    Marion

    #40244
    dmeek
    Spectator

    Marion, thanks … that’s a great article. I saved a copy of the pdf file (45 pages) and plan to read it later.

    Also wanted to add, under the “Uses of radiation therapy – After surgery for resectable cancers” section on the web-link, its basically word-for-word what my surgeon told me for my adjuvant therapy.

    Dale

    #40243
    marions
    Moderator
    #40242
    marions
    Moderator

    Snezzie….try to drink as much as possible in order to flush the chemo through your kidneys and please, eat as much as you can handle including, high protein foods, with some carbs.
    Hugs coming your way,
    Marion

    #40241
    dmeek
    Spectator

    I too had adjuvant therapy. This was after a successful liver resection. I had 6-weeks of chemo (pill form, Xeloda) and radiation. Total of 30 treatment days. My radiation was at the site of my resection in my liver where they removed my tumor. My story …

    I had “clear” margins after surgery. But the margins were so close, literally millimeters, but they were still declared as “clear”. Ideally, they would like to have about a 1 to 2 inch “clear” margin.

    My surgeon at MD Anderson (where I had my surgery) said that after my surgery, they reviewed my case with other oncologist there. The consensus was for me to have adjuvant therapy. Reasoning was since my margin was only millimeters of being “clear”, just in case there were any microscopic cancerous cells that were not identifiable now, the thought was with chemo and radiation, that could potentially kill those cells.

    So mine was more like insurance. They were not specifically killing any cancer cells. They told me that at the outset. But again, with only millimeters of clear margins, their recommendation was for the adjuvant therapy, again just in case. As I had full trust and confidence in my doctors at MD Anderson, I went with their recommendation.

    I hope the best for you, Snezzie, in your treatments.

    Dale

    #40240
    devoncat
    Spectator

    I too got my reoccurance at original tumor site. I didnt have chemo or radiation…boy I wish I had then I would not have to question the what ifs.

    Kris

Viewing 15 posts - 16 through 30 (of 32 total)
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