Ascites set in; I’m so frightened.

Sophie…. The fluid can or cannot come righ back. 20mg per day lasix is a very low dose. I have seen people taking 60 mgs per day 3 times a day. The forst drain I had lasted about 4 week s., the second drain lasted about 4 weeks, those two were sonagram guided. The third drain was CT guide. They took a picture shows where the fuid was and how much and asked if I wanted it drained? I said while I’m here might as well. There was practically nothing to drain. It don’t really hurt. and I preferred the ct guided but some doctors who have done it frquently can do with ease. They just get an entry point of between ribs make a dinky little incision insert the drain and start it draining by pullin back the syringe think -bob. My daughter anf wife watched it done the first two times with sonograp and third time I did it alone because I was having a radiation picture taken to mark the exact location to insert drain. They use a few drops of lquid pain killer as needed if you feel any pain. Then you feel pressure and think it’s hurting but it isn’t. Each time I asked is it in yet? They say yes it ‘s draining away. and I usually say, well someone could have told me and they laugh. Fluid and ascite can come and go away. Increase your lasix if your kidneys are okay. and drink plenty of water like 6 12oz glasse a day at least . It gets the fluid retention draining out through your kidneys. Currently I am dry of fluid retention. Also Take 800 mgs of Ibprofen four times a day as alot of times it is inflammation causing the fluid not the cancer or tumors. Take IBprofen with food or milk as it it can cause ulcers long term use . I use every other day or so or week on and weekoff. You do fell better and sleep better. less abrasivness going on. I had my primary care put in a standing order to drain every four weeks or so right now to maintain comfort. My second test of fluid came back clear of everything. bacteria growth and non malignancy fluid Just because you have fluids is not the end by any means, in fact advocate for it to be done . It’s a pain in the rear for them, but so what. They’ll be draining mine for another year or two if I can keep these ribs and bones cemented together. Go for it girl alot of our symptoms is not the end but livinig and dealing with them. When I start having major organs failing then I will get concerned and determine what I need to stop doing.
Bless Ya Girl !You can handle it. Piece of cake compared to what we have been through . BY the way have you ever heard od razzle dazzle Berry Pie? IF your having an appetite problem try it. Get it at Walmart frozen pie section. Really good if you like blackberries.

God Bless,
Jeff
Jeff

Sophie,

Sending a hug your way, please know that though you are afraid you are not alone.

Also, see:

http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=1434

Patty

Sophie,
I hate this awful CC, and I hate ascites, but – I know they can get it under control, and I believe they can get you back on track again. I will pray for you, and especially that you get to see that new Grandchild.

Love – Joyce C

Dear Sophie…..Peter, for example has had ascities at least for over a year and so have others on this board. Jeff also has fluid removed from his lungs, not infrequently, and has written about it. Others also have the fluid drained when it became too uncomfortable therefore, there are options which you might want to discuss with the physician. I am hoping for others to answer your questions in re: to water consumption as I don’t have any experience with it. Although, you may not be able to notice it but, the Lasix may already be effective. So, who says that you won’t be able to see your grandchild?
I am sending tons of hugs in your direction and am awaiting to hear about the CT scan results, on Tuesday.
Marion

Sophie,
I don’t have any answers for you, but you have my prayers and know that God loves you. He says, “Fear not”. Put your trust in Him, for He cares for you.

Much Love,
Lisa