Bad news – things change quickly

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Viewing 12 posts - 1 through 12 (of 12 total)
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  • #72761
    jz
    Member

    Mark,

    I’m very sorry to hear of the developments, but sending you the best thoughts and hoping that the treatments will bring good news soon.

    You’re such a strong and admirable fighter, I wish you all the best.

    Julie

    #72760
    willow
    Participant

    Mark,
    What a shock indeed. You are a man of grace and dignity. Thinking of you and praying for that miracle of healing, peace, and comfort.
    Willow

    #72759
    willow
    Participant

    Mark,
    What a shock indeed. You are a man if grace and dignity. Thinking of you and praying for that miracle of healing, peace, and comfort.
    Willow

    #72758
    jeffsmomdad
    Member

    Mark,
    Nancy checks the site daily and shares the posts with me. It has been a while since we’ve seen a post from you and we were wondering how you were doing. We are so sorry to learn about your bad news.

    We know you are getting the best medical treatment available. Both Dr. Lenz and Taline were so compassionate and caring with Jeff during our visit to see them. It is truely a blessing to have such great physicians and medical treatment.

    You have been an inspiration and comfort to us in our CC journey with Jeff. We want to thank you and we want to let you know that you have touched our lives.

    You are absolutely right when you say: “No matter the ultimate outcome, the cancer can’t beat me.” The cancer may invade this body part or that body part but it CANNOT attack your strong spirit! You indicated that you hope that you can live this stage of your life with dignity and integrity. Of this, we have no doubt.

    We continue to pray for you and your family. We continue to pray for your wisdom and strength in face of adversity. We feel your wisdom and strength in the face of adversity, even if it is just through a post.

    Stay strong Mark.

    Bob & Nancy
    Jeff’s Mom & Dad

    #72757
    lisacraine
    Participant

    Mark,
    So sorry to read about your latest scans. Sounds like your doctors are being aggressive and that is good. Sending positive thought and prayers of healing.
    Lisa

    #72756
    gavin
    Moderator

    Mark,

    I am really sorry to hear this latest news from you. Yes you sure have had a lot to take in these last few days to say the least. The support and care that you have had from Dr Lenz and his team sounds exceptional to me and I can so see why that has been of great comfort to you. I am glad to hear that you and your team still have your fighting gloves on and we are all here with you as well. Everything is crossed here for your new treatment and a ton of positive thoughts are heading your way from me as well.

    My very best wishes to you Mark,

    Gavin

    #72755
    lainy
    Participant

    Mark, you so remind me of my Teddy so I just want to say that he went through the whole 5 1/2 years with all his dignity and integrity! AND, he never Prayed for himself, it was always for all of us, family and friends. And before a surgery he prayed for GOD to come through the Surgeon’s hands. He also kept his wisdom and humor right to the end. I am so happy to hear, that if needed, you CAN have radiation on the Spine. Prayers and more prayers sailing your way!

    #72754
    mparsons
    Participant

    Thank you Randi, Lainy, and Marion. Indeed, Lainy, how can I keep from winning. With all of the love and support I receive each day, I’ve already won. No matter the ultimate outcome, the cancer can’t beat me. And yes, I believe Taline when she says they will get me through this, wherever it leads. From the beginning, I’ve asked people to pray, not for a cure, but for the miracle of wisdom and strength in the face of adversity. My greatest hope is that I can live in this stage of life with dignity and integrity. I still need those prayers!

    Oh, and yes Marion, RFA in no way excludes radiation, so I may receive radiation on the spine and sternum to control pain in those areas. They want to assess bone integrity with the MRI first.

    Blessings, Mark

    #72753
    marions
    Moderator

    Wow, Mark, I too am shocked to hear of the agressive progression of the cancer. Mark, do the previous RFA procedures eliminate any further radiation to the spine? Reason for my saying so is that we have seen pain to spine metastases be quite responsive to radiation treatment. You are in excellent hands, dear Mark, and I wish for a huge turnaround coming your way.
    Hugs,
    Marion

    #72752
    lainy
    Participant

    Dear Mark, I am so very sorry to read this update. The good news is that you still have options and your attitude is the best, it helps a lot. Are you taking anything for the pain? What a grand team you have as well, never heard of a Doc giving daily calls and that is wonderful! Sending you all the best for a successful session with the Folfox, how can you not win with so much love and prayers surrounding you? I know you will keep us updated and looking forward to the first good report!

    #72751
    Randi
    Participant

    Dear Mark,

    I am so very sorry to hear about your most recent scans. Things seemed to be going so well, so I am sure you are in a state of shock with this latest news. It really is a blessing to have doctors, nurses and staff that are support and optimistic with that “we will beat this together” attitude. Sounds like you have found a team that will fight with you and for you.

    I hope that the Folfox does it’s job and keeps the CC at bay so you can feel well and enjoy your life.

    I will keep you in my thoughts and we are here to fight along with you!!

    Hugs,
    -Randi-

    #8470
    mparsons
    Participant

    HI friends,

    I have not been as active on the site lately, with much going on with work and managing this disease. Still, I read posts most everyday, and lift many of you up in my daily thoughts and prayers.

    I have had a shocking change in my condition in just two months since my last scans. As of two months ago, the three RFA procedures appeared successful and there were no further signs of visual disease. A PET CT this week indicated widespread metastases – new lesions on the liver, spine, sternum, peritoneum, and possibly lymph nodes in the pelvis, abdomen, and chest.

    I had an MRI yesterday, hopefully to exclude invasion of the spinal cord. That may lead to radiation. I have significant pain for the first time with this disease, but Dr. Lenz’s office has checked with me everyday to manage. My liver and blood numbers are now skewing badly. That makes chemo risky. Dr. Lenz believes not treating would be more risky, so I started Folfox. He will watch closely.

    Sorry, that’s a lot to share…it has been a lot to absorb in a few days. Dr. Lenz’s wonderful N.P., Taline, whom I’ve mentioned here before, hugged and hugged and hugged us. “We’ve done this before,” she said. “We’ll get you through this.” A great comfort in all of this has been having good physicians. Another comfort, of course, has been the support we’ve received on this site for which we continue to be grateful.

    Now we carry on.

    Best wishes, Mark

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