April 9, 2015 at 3:52 pm #87647kvollandParticipant
There were concerns about my husband having strictures or scar tissue shortly after surgery. They GI doc wanted to an ERCP and place stents but the surgeon did NOT want to have anyone go back in. According to the surgeon they can be a problem for some people over times as the tissues heal and shrink. In our case the surgeon put him on Ursodiol twice daily. It is a medication that can be given to people who cannot have gallstones removed…..if dissolved the cholesterol in the bile ducts so that it cannot bind to make stone. Our surgeon says that he uses it in those they have concerns over strictures as it keeps the bile flowing. His reasoning is that it’s not so much the anastamosis getting too tight but that they do shrink and if there is any “clumping” of bile. I am not sure if it is working or not but we have not had any more discussions about ERCP and stents and it has been almost 2 years. Might be worth asking about.
KrisVApril 9, 2015 at 4:44 am #87646marionsModerator
Derin….. .Appears that the majority of biliary strictures are related to liver transplantation therefore, I don’t recall anyone mentioning this subject on this site, but hopefully there is someone out there and will chime in on this conversation.
Sending tons of good wishes your way,
MarionApril 9, 2015 at 3:33 am #87645lainyParticipant
Hi Derin, love the good news, not sure what to tell you about the rest but I know someone will be able to help. I also LOVE your picture. Funny but I pictured you to look just like that in my mind! I am sure someone will come up with something. The only thing I can say is Teddy had a PIC line and it was great as they could do everything from that. Your plan is good and that is to talk to others about plans and procedures. I am sending you all the very best.April 9, 2015 at 1:04 am #11126hamptonsarasotaMember
Hi everyone. On the positive side, 4.4 years cancer free and most recent CT scans still confirm this. However, on the negative side, I have another internal/external biliary drain installed and will have a PICC line put in tomorrow to go on IV antibiotics while we figure out what to do from here.
I have had 3 different occurrences of a stricture/astimosis over the past 15 months, one Feb. last year thru May, tube pulled and lasted until end of September. September through December same as first time and it lasted until last Friday the 3rd of April when I got the drain installed. In each of the first 2 occurrences, we did a balloon angioplasty type procedure to stretch the bile duct while installing a larger tube size each time and after 3 sessions, reduced the tube size over a 4-6 week period. We did capping trials and everything was working so the drain was pulled. Lasted about 4 months the first time, a little over 3 months this time.
Anyone have similar experiences with this? I have no right lobe of the liver, the new bile duct connection is in the center of my chest and the remaining left lobe grew to my left side. I’m hoping to hear from Dr. Jarnagin from MSKCC tomorrow but we’ll probably be talking to numerous people to get options and ideas as to what can be done at this point. My local interventional radiologist is basically saying there isn’t any more he can do until we have a plan of attack from other professionals as he has tried all he knows he can try, and I don’t disagree with him. Stents? Long term tube with balloon? Please let me know your thoughts and experiences, I look forward to sharing them with you all!
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