brief history

Discussion Board Forums Introductions! brief history

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  • #51234
    iowagirl
    Member

    MCE…….Savor every moment together. Lift each other up. You and Richard have been through so much and it’s totally understandable that you’d want more time. In the end, that is what we all want ….simply, more time. Prayers for you both.

    Julie

    #51233
    debnorcal
    Moderator

    MCE, I am sorry that your husband Richard’s journey has lead him to this point. We are here for you, please lean on us for whatever you need.

    Debbie

    #51232
    marions
    Moderator

    mce…….Though I did not understand it then (my husband’s path with this cancer) I have come to realize that the preceding days, weeks or months are incredibly precious in many ways. Watching our loved one’s decline is difficult, however we simultaneously take in each and every moment in a strange sort of way. The physical closeness, the hugging, holding, comforting and more is forever stored in our memory bank. We draw on this in the time to come.
    My heart is with you.

    Hugs and love,
    Marion

    #51231
    darla
    Spectator

    I am so sorry to hear this. Richard and you have been through a lot and I understand how you feel, that even though he has had 6 years, we always hope for more. Hospice will be a great help to both of you and will manage his pain which is of the most importance now.
    My heart goes out to you both and I will be thinking of both of you and hoping for the best. Know that we are here for you to help and support you in any way that we can.

    Hugs,
    Darla

    #51230
    lainy
    Spectator

    Dear MCE, I am so very sorry to read about your husband, Richard. He has been through a lot and I wish and hope for him to have a more comfortable time now as the Hospice main goal is to keep a patient comfortable. I remember when my Teddy reached this point he called it our honeymoon and we made every day count like there was no tomorrow. You never know how strong you are until “strong” is the only choice you have! I will be thinking of you both and hope for the best!

    #51229
    mce6
    Spectator

    Richard, a stage 4 cholangiacarcenoma patient, did very well after about a year having chemo and radiation after his liver resection (Feb. 2011) in Dallas at Baylor University. Dr. Celinski took all he could without killing him during the operation. It , along with the treatment in Lafayette with Dr. Brierre and Dr. Shumadine gave him 4 years without much discomfort. In Dec. 2014, he was told he also had Stage 4 Colon Cancer. He had more chemo and radiation, then a colon resection with a temporary ostomy. Rich had to start blood thinners since he developed a blood clot in his leg after the colon resection. He then had more chemo, which made him weaker than ever before. He stopped chemo for a while, then started chemo again. In December 2016, he had several strokes, but had no problems after a day. He came home for Christmas, then on Jan 7, we went to the ER due to black stools and weakness. They found, he had bleeding ulcers in his stomach. On the 10th, the oncologist, told us the CT scan showed that the cancer had spread even more and was advancing rapidly, and that there was no use in continuing the chemo again. He told us to start hospice services immediately.
    We came home on the 12th with hospice care. Richard is on oxygen now, struggling to walk to the bathroom, swollen from fluid around his organs, and trying not to get depressed while waiting to die. I knew this time would come, but we hoped we would have more than 6 years. The doctors have been amazed that he made it so long, I wish he could amaze them some more!

    #51228
    marions
    Moderator

    Hello mce6 and welcome to our site. It was very intuitive of you not to ask the physician anything possibly upsetting to your husband. But, you may want to speak personally with his doctor either by phone or, by the means of an office visit.
    Assuming that the previous adjuvant chemotherapy is repeated via port and the response has reached maximum benefit then yes, most likely he will switch to different agents. Again, the physician will be able to address this with you.
    Stay hopeful and optimistic.
    All my best wishes,
    Marion

    #5348
    mce6
    Spectator

    My husband was diagnosed with bile duct cancer on Jan. 3, 2011. We were told to go elsewhere for a liver transplant or resection. The Baylor doctors in Dallas completed an 11 hour resection on February 15, 2011. After 19 days in the hospital, we went home.
    Since then he’s had 6 weeks of chemo and radiation, which started on April 11, 2011.
    He is receiving his 1st round of chemo through his port right now. The doctor told us at 9:30 this morning that he saw more cancer in his liver. The doctor said he’ll do another CT scan after 2 3-week rounds of chemo to see if the spot has been reduced. If it doesn’t shrink, they will change what they are giving him.
    I don’t know what to expect right now and I did not want to upset my husband by getting answers from the doctor that he’s not ready to hear.
    prayerfully, mce6

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