Viewing 13 posts - 1 through 13 (of 13 total)
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  • #44338
    slittle1127
    Member

    Dear Lisa – We also use a meal replacement and lots of cottage cheese with fruit and soups. They seem to go down better and stay down. Please talk to your doctor about controlling the pain. Your energy level will be better if you aren’t trying to fight pain too. Keep hangin’ in there. Blessings, Susan

    #44337
    lainy
    Participant

    Hi Lisa, We are so very sorry to read this latest report! As for nutrition Hospice put Teddy on Carnation Breakfast shake every morning. It has everything you need for a meal. I add Bananas or berries and blend. He likes the Vanilla and if you get to a meal and just don’t feel like eating the shake will suffice. I wish there was something I could tell you to make it all go away. Thinking of you lots.

    #44336
    lisa
    Participant

    On Friday I got the results of the scan. There is very little growth in the nodules in the lungs, but there is a growth in the spot on the peritoneum from 18 mm to 30 mm. That is not good. I’ll be continuing in the Irenotecan treatment on Monday.

    I am feeling more and more tired as time goes on. I’m trying to reconcile what I could do with what I need to do so I don’t waste my energy. I have been having more episodes of pain for some reason. Don’t know where that is coming from except maybe from trying to digest fats? Consequently I am trying to eat low fat and eat very little. Should probably look into nutrition drinks as I’ve been losing about 2 pounds a week lately.

    #44335
    marions
    Moderator

    Lisa….glad to hear that you are home again and I hope that the crappy feeling has subsided. Good luck on Friday.
    Best wishes,
    Marion

    #44334
    slittle1127
    Member

    Dear Lisa – Glad it’s behind you. Hope you feel better each day. Praying for good news. Blessings, Susan

    #44333
    gavin
    Moderator

    Hi Lisa,

    Glad to hear that the ERCP went well and I hope that you feel better today.

    Best wishes,

    Gavin

    #44332
    lisa
    Participant

    The ERCP went well and just in time. For some reason it was clogged with blod clots instead of the usual grime. I don’t know what that means. It took a long time to get past the tumor that encroaches in and narrows the stents.

    Felt crappy and nauseaus after I came home last night. Hope to feel better today.

    #44331
    marions
    Moderator

    Lisa…..the metal stent should give you a reprieve from the regular exchanges. I am crossing my fingers for the scan results to lead to another treatment option if indeed the current one has lost its effectiveness. My thoughts and good wishes are with you.
    Marion

    #44330
    jamie-d
    Member

    Lisa,
    You’ll be in my thoughts and prayers on Friday. I’m gonna be optimistic that the scan results will be good. Hope the ERCP went well today. Take care and God Bless,
    Jamie

    #44329
    gavin
    Moderator

    Hi Lisa,

    A busy month for you indeed. I hope that todays stent exchange went well and that the new larger metal ones will work longer than the previous smaller plastic ones did.

    I will be thinking of you on Friday and hoping for the best possible news from your meeting with the oncologist. I will keep everything crossed for you and am sending you loads of positive thoughts.

    My very best wishes to you,

    Gavin

    #44328
    lainy
    Participant

    Hi Lisa, my thought will be on you Friday, hoping for a good report or one that can be treated! You are a brave and couragous woman and I admire you and your strength. I told Teddy is is not his time yet as they are still working on his house. Good luck Friday.

    #44327
    slittle1127
    Member

    Lisa – Look at you 40 months and still going. I agree that God will call you when He is ready. He is getting your new home ready and when He’s done, He’ll call you. You continue to enjoy every day with your life and your family. I’ll say prayers for you and hope for a better than expected report from the doctor. Thanksgiving is just a little over a week away and I’ll be thankful for you having this time with your family. Blessings, Susan

    #4335
    lisa
    Participant

    The first two weeks of November I had chemo and a CT scan. Today I’m having an ERCP to take out the old stents and put in the new. My doctor has high hopes for the new stents as he is taking out the smaller plastic ones and planning to put in the larger metal ones. Hopefully the metal stents will last longer than the 6-8 weeks that the plastic ones do.

    This Friday I am meeting with my oncologist to go over the results of the latest CT scan. I haven’t seen it yet, but based on the results of the scan taken 6 weeks ago, I am not too optomistic that it will be good news. We are running out of chemo options. I’ve had about 6, maybe more, different regimens, each which provide about 6 months of effectiveness. I like the current irenotecan/gemzar regimen because it does not have the horrible side effects of the other chemos, so it leaves me feeling healthier. Since this is my “rest week” I’ll be back on chemo next Monday or Tuesday.

    Even though I am bracing myself for the results, I am still confident that my life, however long it will be, is in the hands of God. He’ll take me when he’s ready. I am so grateful to have had 40 months past my initial diagnosis. Who knows how much more time we’ll have? No one knows, so I for one am going to enjoy life and my family as much as possible.

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