Our doctor in the uk does not like to talk about tumour markers (even though they do test them). He often reminds us of the many things which could cause them to raise such as infection or scarring, diarrhea etc etc. I once read a study which found that basically markers are only an indication of the truth 50% of the time (but that they are more likely to be showing the true picture if they are low – ie that there is less sign of cancer). I hope that makes some sense.
I was wondering if everyone, or most people, with cholangiocarcinoma had elevated markers such as CEA, CA-19, and AFP? All of mine fell within normal limits and all of my liver enzymes have been normal as well. I have biopsy-confirmed adenocarcinoma of the liver and lymph nodes in my abdomen. A PET scan however was negative for the lymph nodes while positive for the liver tumor. It has been confusing to me