Can’t move arm

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Viewing 14 posts - 1 through 14 (of 14 total)
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  • September 29, 2012 at 12:12 am #64981
    lainy
    Spectator

    Laurie, thanks for reminding me about Hospice, I forgot, chalk it up to age and Prednisone. If you ever need me please feel free to e mail me anytime! I had Hospice in the home for 4 months and they were great! I just wish I could take all this CC away from everyone!

    September 28, 2012 at 11:43 pm #64980
    peony
    Member

    Thanks ladies. Lainy we called hospice in about 2 weeks ago. They are great so far. It’s such a relief to have someone to reach out to 24/7. The nurse that is assigned to us is incredible. They’ve made adjustment to his medications that have already helped to reduce his pain.
    Fractures are very common with bone mets. He has several rib fractures. The one in his shoulder blade is unusual.

    Marion, I remember reading some of Jeff’s entries on mets. I will take another look at the links for anything that may help.

    Best, Laurie

    September 28, 2012 at 10:58 pm #64979
    marions
    Moderator

    Peony……Our JeffG had spoken extensively of bone mets -you might want to look at some of his postings. Possibly there is something hidden in his threads that could be of benefit to Dan.
    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=1527
    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=4471
    My heart is with you.
    Hugs,
    Marion

    September 28, 2012 at 10:35 pm #64978
    lainy
    Spectator

    Peony, omGosh, I have never heard of this! Have you thought yet about bringing in some Palliative care? It does not mean the end but they can be of so much help especially when it comes to pain control. Of course you want to be with him, work can wait. It doesn’t matter if its a month or years, make this your ‘special moments’ time or as Teddy used to say, “our Honeymoon.” No wonder Dan was in so much pain. My heart goes out to you both and I have you in my prayers. Be strong.

    September 28, 2012 at 9:09 pm #64977
    peony
    Member

    The cat scans showed multiple fractures in the scapula caused by new tumors. Unfortunately radiation to shrink the tumors would be too dangerous so the only resolution is to increase the pain meds and imobilize the arm.

    Dan is home now and resting. He is definately declining. So, starting next week I will be on family medical leave from work. This will be the first time in over 30 years that I haven’t worked everyday of the week. It will be strange but I need to spend time with him.

    September 25, 2012 at 11:08 pm #64976
    marions
    Moderator

    Peony…..hope the answer lies within the test results.
    Please, keep us posted.
    Hugs,
    Marion

    September 25, 2012 at 10:53 pm #64975
    lainy
    Spectator

    Peony, best move you could have made. I will be looking to see how the mystery ends tomorrow!

    September 25, 2012 at 10:49 pm #64974
    peony
    Member

    thanks everyone, we’re in the hospital and had 2 cat scans. hopefully the mystery will be solved tomorrow.

    September 25, 2012 at 8:28 pm #64973
    pcl1029
    Member

    Hi,
    sorry, I do not know the answer to your problem.
    God bless.

    September 24, 2012 at 9:59 pm #64972
    marions
    Moderator

    Peony……Is it possible to have a pain specialist involved?
    Hugs,
    Marion

    September 24, 2012 at 8:55 pm #64971
    sandie-in-france
    Member

    Peony,
    I am not sure if my situation is or was similar to your dads, but my I had immense pain in both arms and although my right arm is now 95% ok my left is still painful and lacks a lot of mobility. I have been told this is likely to be due to nerve damage inadvertently caused during the resection, specifically the phrenic nerve. It may be worth checking out. Take care xx

    September 24, 2012 at 6:27 pm #64970
    gavin
    Moderator

    Hi Peony,

    Sorry to hear this news about your husbands shoulder and arm. I’ve no personal experience of this as this never happened to my dad. And off the top of my head, I can’t seen to remember reading or hearing about this happening to anyone else here. I do agree with Lainy in that taking your husband to the ER is the best option right now. I hope you can get him in there and that they get this sorted now. Please let us know how he gets on here.

    Hugs,

    Gavin

    September 24, 2012 at 2:05 pm #64969
    lainy
    Spectator

    Dang! Teddy never had anything like that but I think I have mentioned before that he was in a lot of pain and Hospice did what ever they could and someone in Hospice was in touch with his ONC through the whole thing. They gave him Morphine (75mg long lasting) every 12 hours and a breakthrough of 50mg every hour. It worked for him. He would probably need a scan to determine if it is bone mets. I would get him in to ER ASAP! There comes a time when our boys need to listen to us, its hard but has to be done. I sure hope they can get this under control!

    September 24, 2012 at 1:54 pm #7394
    peony
    Member

    On top of everything else now my husband is unable to move his right arm. We’ve been back and forth with hospice and can’t figure out what it is. The pain meds (methadone, oxy, ibprofen and neurontin) aren’t touching the pain. Today they want to try a muscle relaxer. Tried to get in to the oncologist but they are done with him since he’s on hospice. Guess the cant bill enough for hospice patients !!! He doesn’t want to go to the er but that’s the next step. Anyone else ever have this shoulder arm pain??? Could it be the bone mets??

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