hi im new here, i just found out recently my mum as this disease, ive read up a little on it but dnt fully understand the extent, im absolutely devastated especially at the thought of losin her at 52 yrs, she is currently in hospital, after been admitted in with severe jaundice,pain, and weight loss. they av told her there is no cure as it is rare,i am so scared,is there anything i can do to help? i just dnt no wot will happen,how long she will be with us for. thnx for listening to me i feel so lost and alone.