Marions,
when they did a CT scan 3 weeks ago they said he had fluid. he was scheduled for the drainage, went to the hospital, was prepped and then they said he didnt have enough to be drained. thats when they made the decision to start the Gemzar.
the CT in Oct. said the tumor hadnt grown but when they tried to do the resection in July and they couldnt we were told that the tumor totally encompassed the whole area. before the surgery we were told that at least 1/3rd of the liver was already involved and that there were numerous spots in his pancreas. the surgeon never went near those areas to tell us what they were.
I am having problems and my GI said we need to know if the CA is in it.
The CA19-9 is over 1600 and the CEA is very high too. we know that means the CA is elsewhere but when we ask for more tests they say that there’s no need as he is getting only pallative care now so it wouldnt make a difference.
what do we do? Dad lives with my sister and she is talking to the nurse who has been forthwith but I think its time to have a straight-forward talk with us as I having been going with him too and the Dr. skirts around a straight answer.
sometimes I think they just want to make the money on the treatments and not whats best for the individual patient.