Dad’s count hasnt gone any with 4 days of shots. having nose bleeds
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Marions,
when they did a CT scan 3 weeks ago they said he had fluid. he was scheduled for the drainage, went to the hospital, was prepped and then they said he didnt have enough to be drained. thats when they made the decision to start the Gemzar.
the CT in Oct. said the tumor hadnt grown but when they tried to do the resection in July and they couldnt we were told that the tumor totally encompassed the whole area. before the surgery we were told that at least 1/3rd of the liver was already involved and that there were numerous spots in his pancreas. the surgeon never went near those areas to tell us what they were.
I am having problems and my GI said we need to know if the CA is in it.
The CA19-9 is over 1600 and the CEA is very high too. we know that means the CA is elsewhere but when we ask for more tests they say that there’s no need as he is getting only pallative care now so it wouldnt make a difference.
what do we do? Dad lives with my sister and she is talking to the nurse who has been forthwith but I think its time to have a straight-forward talk with us as I having been going with him too and the Dr. skirts around a straight answer.
sometimes I think they just want to make the money on the treatments and not whats best for the individual patient.kmemoro….try to speak with the doctor or speak with the nurse. We have not seen nose bleeds caused by this cancer so you would want to know why this is happening. As Percy had mentioned previously, the ascities (buildup) of fluids in the abdominal area can be drained. Don’t be afraid to speak up as you are exercising your right as an advocate for your Dad.
All my best wishes,
Mariondo u have some kind of a medical backround? r u an PA, RN?
I’ve worked for Dr.’s for years and I do know some things but was never with oncologyKathy, where is he being treated? you should bring him to another hospital.
If your in NJ there are great hospitals in NYC like Sloan Kettering and NY Presbyterian.Please help me!!!!!!!!!!!!!!! On October 25th my 78 year old Dad had his 1st treatment with Gemzar.He was supposed to have 2 weeks on and 1 week off. He went back this week and was told his count was too low and that they would give him a shot to boost it and that hasnt worked. He has now had 4 shots and its still hasn’t budged-its still in the 60 range. He has started to have nose bleeds and his stomach is getting larger every day. He has no appetite and is having bouts of constipation and diahrea.
He had 5 weeks of 5FU and radiation previously and did well.
What do we do now? the Dr seems to be playing a waiting game but its not “His Dad”.
Help me,
His Loving Daughter
Kathy (he calls me”Pet”)
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