May 1, 2013 at 1:39 pm #51363
Dear Bonnie, again, you are so right on! Just want to say that Carnation Instant Vanilla was Teddy’s favorite and I would blend in a banana or any fruit will do, he loved it with banana. By the way this drink was recommended by Hospice as they said it could take the place of a full meal if one did not want to eat. Good going, again!May 1, 2013 at 1:17 pm #51362bonnie5Participant
I have had issues similar to yours. I was taking senekot at night and it worked for a while but then I was at the highest dose and it stopped working. I can only say what works for me. I am on hydromporphone for the cancer pain and for digestive and bowel issues I take 4 senekot at bed time and 15-20ml of lactulose and believe it or not when I get the pain from digestive/bowel issues I take 2 extra strength Tylenol and it is gone in a half hour or less. It took many months to figure this out but now I am virtually pain free everyday. I stay away from fatty foods, dairy, nuts and eat often and small portions. Lots of carnation instant drink and puddings. Walking even just around the house also is helpful.
BonnieOctober 19, 2012 at 7:41 am #51361
Art….I agree with Lainy. The kind of pain you are experiencing has to be addressed by the physician. In regards to your digestive issues: is it related to a sluggish bowel or is it due to a possible obstruction? Again, this is a question you would want to pose to the physician.
This had been suggested at a digestive issue symposium:
Magnesium Citrate – prescription only, for acute sympton control.
I remember our JeffG mentioning drinking ½ of the bottle –wait 4 hours and then repeat if necessary.
Stool softener ½ hour prior to meal
Followed by Laxatives after consumption of meal.
Please note that diuretics and oral stool softeners with salt will drain your body of potassium.
Lemon, even lemon drops help rid the mouth of salty/metallic taste caused by chemotherapy.
Meals high in protein – six meals spread throughout the day
Moving around after meal consumption, if possible small walks,
In some instances it might be necessary to eat while standing upright.
Fluids in regular intervals throughout the day – most important after chemotherapy. (Flushes chemicals through system.)
Protein shakes such as Boost or, as Lainy had suggested Carnation Instant Breakfast.
Due to dietary restrictions some use gluten free shakes or whey protein shakes.
Reduce fat and spices.
I hope that these suggestions help.
Please keep us posted.
All my best wishes,
MarionOctober 19, 2012 at 4:19 am #51360
Hello Art of Science, you should not have to suffer with this kind of pain as there are medications you can take, not sure why your ONC has not given you an RX for them as I don’t think over the counter Meds are going to do the job. I think the Pancreatic enzymes may be a good idea, I have heard of that. I would also stay away from dairy, greasy and fried food. You might want to try a nutrition shake and use skim milk or no fat milk. My husband loved the Carnation Instant Breakfast, vanilla, and I would blend in a banana. This takes the place of a full meal and has all the nutrients. Homemade comfort foods like soup are good too. Try “grazing” all day instead of larger meals. May I suggest you repost your note under a new topic as this thread is over a year old and I am not sure everyone will catch it. Wishing you the best and hope you get this issue solved. Please keep us posted.October 19, 2012 at 4:00 am #51359artofscienceParticipant
Hi Ryan and all fellow followers of this thread..I’m a 64 year old sufferer of CC, late stage and inoperable and getting ready to start 3rd cycle of chemo. I have had incredible, excruciating pains from gas from the very beginning. They are so debilitating that I can’t do anything. The pains are of two types, one that starts w/in 1/2 hour- 45 min after eating and fills me w/gas. The solution I found is to chew 2-3 Beeno tablets prior to eating followed by Gas-X after eating. The second type of pain starts abt. 6hrs after eating, and leads to a uniform pain in the lower gut that can last a long as 14 hours. I have not found an effective antiflatuant to deal with this, My Dr, is considering having me start on pancreatic enzymes. As a result my apetite is nil and I lost about 50 lbs in last three months. I continue to be in excruciating pain and if anyone has any suggestions, I would appreciate it.August 14, 2011 at 5:39 am #51358
Ryan…I forgot to mention that we have several postings on flatulence and digestive issues. Google function, top, right, enter: digestion, or flatulence. Of course others may also come forward and share their experiences with you.
All my best wishes,
MarionAugust 14, 2011 at 5:35 am #51357
Ryan…I echo the above and would like to add the following:
Enzymes help with digestion, small, high protein meals several times per day, stool softeners before and after in order to encourage bowel movement. Additionally moving around right after the meal should help your Dad feel better. What works for some may not work well for others but the most important thing to remember is to keep trying in order to find something that works best.
Please keep us posted.
All my best wishes,
MarionAugust 13, 2011 at 10:19 pm #51356
Hi Ryan. Your dad sounds like quite the fighter and I am sure most people wait until things get worse before they take action to better how they feel. Once surgery is involved it seems to change the digestive tract. What helped my husband after his Whipple was perscription Prilosec, not over the counter. Teddy was told he would have to take it every day the rest of his life. It really helped.
There are RX your dad can take for nausea and I am surprised the doctor has not offered any of them. Teddy also had an e coli infection and it just wipes the energy out of you for a few weeks. It is a slow come back. Stay away from fried and fatty foods. Carnation Instant breakfast is a good substitute. I used to blend in a banana and Teddy loved those shakes. In fact if dad doesn’t feel like eating, a drink can be sustituted for each meal. Best wishes. () () () () ()
Considered yourself hugged!August 13, 2011 at 10:05 pm #51355pcl1029Member
This is for informational purpose only.
For gas,I will take simethicone(Mylicon) 80mg-an antiflatulent,four times daily.
God bless.July 1, 2011 at 2:38 am #5367ren11Member
My name is Ryan. My 64 year old dad was diagnosed with CC just over a year ago. What a year it’s been. I won’t go into all of the stories and struggles that he has gone through because I know all of have been through it. A lot ups and downs, infections, hospitalizations, surgeries so on and so on. The last infection he had a couple of weeks ago was e coli and klebsillia. After several days of strong antibiotics those have cleared up but he has dropped even more weight. His energy level is way down and he is just tired. Before that he was still tired but still would make dinners and things like that. He still is trying to make himself eat but he is having such a tough time digesting food these days. Sometimes even a small portion can cause him a lot of gas build up, indigestion, acid and sometimes ends up vomiting.
We’ve asked a doctor for some recommendations on a protocol that could help his symptoms but they haven’t been that helpful. My dad is more of a reactive type so he waits until the pain begins and then he’ll take something. Does anyone have any recommendations of a good regimen. For example maybe take a tagament or zantec 2 times a day and a gas-x with every meal. Something along those lines. One doctor recommended charcoal tablets which we haven’t tried yet.
I’ve been a reader to this boards on and off for the past year and have never posted. I guess it just hurts too much. I pray for everyone that is going through this or has a loved one going through this horrible disease. I wish I could hug you all.
Thank you so much for any advice you might have.
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