Distraught
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Dearest Jtoro, welcome to our family but sorry you had to find us. You have done everything right. Please do not second guess yourself. CC is an extremely hard Cancer to diagnose and many times there just are not enough symptoms until it gets to a bad point. We have had people here who were diagnosed much the same as you and they continue to fight and are here to tell about it. You are with one of the top doctors and we just don’t know if chemo is going to work or not however, none of us was born with an expiration date on the bottom of our feet. Yes, it is devasting news but with the right attitude you will get over this period and will find the strength to stand up and fight. Teddy and I talk about it all the time as we found that by talking about it we accept it easier. I know for a fact you are going to be getting many posts welcoming you. Please come here often to vent, advise or just to say hello. Wishing you and your family the best and sending cyber hugs your way.
Dear Jtoro,
I am 52. My situation is different than yours, But I am on gemzar and xeloda-with very little problems as well.
I don’t really have much to say to you except that I have done an extreme amount of research and the most important thing that you must know is that absolutely nothing you have done has “caused” this to happen to you. NOTHING. Please believe me. Do what you need to do to understand that this is not your fault. Release the guilt, because the “blame” isn’t yours.
Please ‘join’ this group of marvelous people—-read their posts–they have an amazing amount of knowledge and advice/suggestions.
But the nicest thing is that they are so very caring of each other.Snezzie
Jtoro,
Welcome to the board.You have found the right place for support and answers. Dr. Lenz is highly reccommended, so you are in great hands.This is a tough cancer. That said, we have had several members live years with the disease. What are you hoping for with this chemo combo. To be blunt, it rarely puts anyone in remission, though we have had one or two members that it worked for. Are you hoping to shrink it for surgery? That has happened several times with our members. We all need to stay realistically optimistic. We need to know the facts, act on them, then hope and pray for the rest.
I am classified as stage 4 and I am only 35. I know I am terminal now, but that does not mean I will be terminal in 3 years. Things are coming down the pipeline they say and I plan on being here when they come. But I have made a will, divided my possessions and wrote letters to people I care about to be given when and if I die. Now, I can focus on living.
I am going to give you the best piece of advice my psychologist has ever given me. If you only have 3 months, do you want to waste it worrying about death and being sad? That would be terrible. But what would be worse, living 3 years and wasting it worrying about death and being sad.
Being sad and worried and angry and frustrated and scared is all ok. But dont let that take over your life. I am very lucky that in Sweden, they immediately hook you up with a psychologist after being diagnosed with cancer. I HIGHLY reccommend seeing someone to work out things. My husband and I take turns going separately and going together.
You might want to rethink about talking to your kids more. They are old enough to google gastric pain and cancer, your doctors name and specialty and your chemo combo. If they do, they are going to get to cc, liver, or pancreatic cancer. All which are scary and they might need to get some real answers. I know I would google if my mom told me cancer and gastric pain.
Take care. We are here for you.
Hugs,
KrisI am 49 and after a month of test was diagnosed with cc on may 24th. I am devastated. I have a husband and 2 children 14 and 17. My cancer is stage 4, had no symptoms until I went to doctor for upper gastric pain. My cancer has spread to abdomen and peritenial area. I. Blame myself for not knowing and somehow causing this to happen. I begin chemo on
may 28th with dr. Lenz at USC Norris. Taking xeloda and gemzar. No problems with chemo. Sometimes trouble eating. What if this chemo doesn’t work. I am distraught over my children. We have only told them I have cancer, not the type. I live in a great neighborhood and community and have tons of support. So distraught.
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