Dr. Javle is my doctor! He is a very nice man, and I’m sure will get back with you. We are also far away from TX, but we are willing to travel all over to get the best help. We will be there next week for more scans. Depending on what they say I might try Mayo and will also be sending my scans to Dr. Kato.
I will say, I do love his nurses. I email them when I have a problem or question and they get back to me within an hour. Good Luck!