January 19, 2018 at 1:42 pm #96481bglassModerator
Regretfully, I don’t have any leads for doctors in Canada or Mexico, other than suggesting you consider starting at the beginning with a good gastroenterologist given no one has diagnosed the pain you are feeling. Hopefully other board members have ideas on doctors.
After having major cancer treatment, it is natural to guess that subsequent health concerns must arise from that source, but it is always possible this pain is from an unrelated source.
Here is an article about adhesions that might be helpful. It also indicates other possible sources of abdominal pain.
Regards, MaryJanuary 19, 2018 at 12:36 pm #96480ghiguy2016Participant
Thanks for the prompt response. Additional CT Scan was good, Drs can’t identify the source. Few Drs. GP/Oncologists are familiar with the Whipple surgery so they are not aware of related complications. Surgeons don’t do a follow up so I have no knowledgeable Dr. to consult. Is there a post surgery diagnostic specialist or referral anyone can recommend in Canada? I am in La Paz Mexico for a few months now; any Mexican recommendations?January 19, 2018 at 10:32 am #96472bglassModerator
It is good to hear from you, but certainly not good that you are experiencing such pain.
I looked at your earlier post, and was reminded that you had a stent, whipple surgery, then chemo and radiation. That is quite a lot of treatment, and I hope it has been successful in keeping the CCA at bay.
What is your doctor telling you about the source of the pain? Have you been offered any other options to treat the pain other than over-the-counter pain killers?
Some of our folks have developed abdominal adhesions after surgery, which is a form of internal scarring that can cause pain. In my own case, since resection surgery (2015), I still have daily twinges and stabs of discomfort around the incisions and around the focal points of the radiation treatment – but nothing on the order of the pain you are describing.
Are you still in Prince Edward Island? My family took me there for a holiday when I was very young and mad for the Anne of Green Gables books – I still remember the ferry and how lovely the island is.
Regards, MaryJanuary 19, 2018 at 9:21 am #96470positivityParticipant
I don’t know how to help, but share my experience.
My mom was not operable and when doctors spoke to her at the onset of diagnosis, a couple of them said she will eventually feel extreme abdominal pain. The bad news of diagnosis was enough and to hear what will happen added to it. She experienced pain always when the stents no longer worked or high bilirubin or just the nature of bile duct progression. She was able to stay away from pain meds for about 9 months, but it got to a point where she had to take Norco for the pain. It seems she gets it on right side and occasionally all over. I always recommend everyone to have a pain management program set up from the beginning, not to wait until experiencing pain. We looked into it later. What have you discussed for pain management? Explore and learn about pain management and ask your doctors about options.January 19, 2018 at 8:59 am #96469ghiguy2016Participant
This nightly ritual is exhausting. Started 10 months after surgery. Just before or after supper get onset of a upper left abdominal pain. Lasts until the Advil or Ibuprofen kicks in but often reoccurs waking me. Definitely contained to the left side. Pain is gripping. Anyone dealing with this and if so how?
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