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    First, let me say how very sorry I am for your loss. CC is a terrible disease and there are many of us left reeling from the aggression of this cancer.

    I wanted to let you know that there is no problem at all in sharing information. In fact, I spend time everyday copying links from this discussion board to a number of CC Support groups in Facebook – it doesn’t really matter how patients and their families get the information as long as we can provide it.

    I lost my son to CC. I joined the Loss of a Loved One to Cholangiocarcinoma FB group and, like you, received so much care and support.

    Keep Well,



    I’m not sure if this is allowed. There’s a private Facebook group for “Widows and Widowers of cholangiocarcinoma”   I have found it to be very warm and welcoming.

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